Wednesday, March 3rd, 2021

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Day 62

Today was the kind of day that makes even someone like me wish for Spring.  The weather was mild and the sun was shining. Everything felt a little easier.

I managed to be highly efficient all day — both getting in my Peloton miles and going to yoga (!!yay!!) plus running some errands, seeing the chiropractor AND making the majority of dinner.

I did all of it with a killer headache which is (for me) a huge accomplishment.

When I asked Dr. M for a referral to another neurologist last week I thought he took me seriously.  (He *doesn’t do* migraines …. just MS).  Three day long, debilitating headaches occurring after my infusion like clock-work seem … suspicious at the very least.  But there was no referral in my paperwork and my disillusionment with modern-day healthcare deepens.

It’s just a frustrating place to be — governed by my health but unable to get any actual, comprehensive help.  It’s all so fractured and not a single doctor wants to say anything for certain for fear of a lawsuit.

It’s exhausting.  I’m exhausted.  As though MS fatigue weren’t enough.

Ergh.

Xox, g