everything in moderation
One of the very hard truths I’ve learned since January is that moderation – and more importantly, being aware of moderation – is infinitely important to my well-being.
I used to believe that if you just pushed through, you would get to the other side, you would accomplish that which you wanted, and all would be well. Unfortunately, it doesn’t quite work that way for me anymore.
I have to confess ~ it’s humbling and really really frustrating.
Let me paint a picture. Imagine growing up the American daughter of a Brit. A woman who suffered unimaginable loss at the tender age of twenty-two, rebuilt her life and became a success both personally and professionally after moving to the United States.
That’s not ‘a little’ to live up to ~ it’s a boat load. My mother pushed through all the hard times ~ stiff upper lip and turn the other cheek and ‘buck up’ and all that jazz. Additionally, as I started to deal with all my baggage, she was soldiering through her own ~ much more gracefully and with incredible focus of purpose and positivity.
It’s been a rough few weeks for me. I hesitate to admit that, because I don’t want to seem weak, or as though I were exploiting my health for attention or to be given consideration. I’m trying – with various levels of success – to keep living as normal a life as possible. It’s not always easy. I’m very tired. And for the past few weeks, as I struggled through a flare and IV medication (among other, equally fun, things) I have had to come to terms with my limitations.
I’m not sure which is the best word to describe it ~ angry, sad, impotent …. My brain floods with descriptions, but my body is paralyzed from action.
Last weekend the man and I ventured north to visit his home town, and after eating highly processed meals saturated with sodium I knew that even though I didn’t always feel it, our diet makes a huge impact on our lives. I knew that sleep played as big a part as anything ~ and that stress absolutely triggers my symptoms.
No more could I will myself to do as I bid. My condition has made me be honest with myself ~ revelatory.
Here’s the truth ~ in a nutshell, and as I know it so far.
Sleep is my friend.
A balanced diet is my friend.
Green smoothies every morning make me (and my body) happy.
Gluten does not.
Two or three glasses of wine are my limit.
I have to focus on work/life balance ~ otherwise, I can’t see a thing.
Sometimes (more often than not right now), I have to say no.
Saying no doesn’t mean I’m weak, or a failure.
Water – lots of it – is my friend.
Life shouldn’t be stressful, (other than work ~ which really can’t help itself).
Loving your job is a blessing ~ be thankful.
Having someone beside you who understands and supports you is invaluable. Seriously.
I’ve found that when things feel a little overwhelming, making little lists like the above helps me keep things in perspective. Every day I learn something, every day I hit a road block I wasn’t expecting … but the truth is that those things don’t always have to do with MS, and trying to get myself to see the bigger picture is a good exercise. I do have to walk my own journey, and I have to be comfy in my own moccasins. It’s really easy to look around and compare my journey to others ~ but it’s not really helpful or healthy. Those are things I have to remember.
let’s hear it for the boy
I meant to hop on here yesterday, but here I am, a day late again.
In 30 days the man and I will be saying “I do” and in honor of that, I thought I’d share a few pics. It’s a really exciting time ~ but also full of so many things ~ I hope that when I look back I remembered to take enough time to savor it. It’s a huge promise and one I am humbled to make. My best friend, my sounding board ~ my partner in crime always.
This was in our very first year of dating.
Is he not the cutest thing in the whole world? Unconditional love.
Us at Longwood Gardens to celebrate my 29th birthday. We love Christmas!
At Alex’s Lemonade Stand’s Fundraiser, “The Great Chef’s Event.” We were lucky enough to go in 2010 and 2012. We’ll miss it this year because we will be on our Honeymoon!
The one time the man got me to dress up for Halloween ~ and I actually had a lot of fun!
One of my favorites ~ Dinner En Blanc Philadelphia last year. I love that we do fun stuff together like this ~ I’m really hoping it happens again, but so far, I haven’t heard anything. Makes me sad … but glad we did it last year!
Our four year anniversary last year. This year, we’re upping the celebrations. But boy oh boy do I love Va La Vineyards.
This one is an oldy ~ back when my hair was pretty blond! It’s funny to look at pics and realize that even though you don’t think you’ve changed all that much … you have! I love John’s smile in this picture. Too bad I look so solemn!
This is funny ~ our very first Art Museum date. We talked about going from the very first conversation we ever had. It took us over four years to get there. Silly us.
One of my all time favorite pictures ~ wearing our football gear, out in Wyoming’s early morning, driving through the parks. It was such a great trip.
John’s funny face.
My funny face.
He’s the love of my life. I can’t wait for June 1st. xoxo
accentuate the positive
Okay, upon reflection of yesterday, I was in a pretty low place, so I figured I should probably add a little fun and lightness to the atmosphere before the blog is overcome & bogged down by sadness. Urgh. (Have you ever listened to the newest Caberet soundtrack? Alan Cumming does this amazing ‘urgh’ sound ~ that’s what’s in my head!).
Couple positives ~ despite having to drastically cut back my wine consumption, the man and I got an awesome dual zone, eighteen bottle fridge yesterday. So excited about it (even if his car accessories still haven’t arrived!).
And we made a decadent, yet gluten-free meal for dinner ~ almost as indulgent as Micky Dee’s (my ‘feel bad’ favorite) but so much better for us! Nachos!
We used:
Gluten free corn chips (sea salt flavored!)
Fresh tomatoes, diced
Fresh basil (did I mention the man built me a little herb garden?)
Black beans
Grated white cheddar
Wild ground antelope
Seriously, we thought we were going to run out, and we had loads extra. So good. So things aren’t that bad I guess. It’s all just about learning, pacing myself and knowing when to step back, take a breath and enjoy the ride.
hard truths
Where to start ….
Here’s the thing. I know what i want to say. I just don’t quite know how to get there from nothing. Ultimate challenge, eh?
So, truth. After all the sympathy and the positive thoughts, at the bottom of it all lurks the cold, hard truth. You don’t have MS. You aren’t struggling. My mother said this to me matter-of-factly, as she has been dealing with it as well in her own situation. She may have even laughed dryly and then said with total clarity, “You know Mousie, everyone says they are so sorry ~ but their gut reaction is relief. And wouldn’t yours be?” A thoughtful pause. “It would be. I would be relieved it wasn’t happening to me.”
Aye, there’s the rub.
Listen, she’s right. In the past, when I’ve heard about other people’s trouble I’ve felt terrible, but also secretly glad that I got to go home and forget all about it. And I know that as I struggle through all these changes no one is sitting at home worrying about me. Life moves on, there are things to see, to do, to experience. Heck, I have so much exciting stuff going on I don’t even want to have to deal with all the baggage. Unfortunately, here I am.
It’s humbling, all the things I’m learning as I work through my very first *official* flare. I’ve had good moments, a lot of bad ones, and I’ve been horribly tired (hence the silence on here). I wonder how many others are out there, dealing like I am, figuring out how to navigate this stuff. It’s not easy. And any idea I had of just sort of brushing over MS is gone. No one could ignore this stuff. I mean, wrap your head around being 33 and barely able to see, walk straight or tie your shoes? If it wasn’t real, it would be sort of hilarious. It still kind of is.
So I thought today I would reflect on the things keeping me sane, keeping me smiling through this.
I met a man with MS who was so kind, smart, and utterly sympathetic on Sunday, and he has agreed to talk to me and help me in any way he can. It’s amazing how generous people are ~ especially when they truly understand and care.
MS has given me perspective on life ~ I just don’t have time for the crap anymore. I want to be happy, to enjoy the good things, to laugh with my love, snuggle with my puppy, enjoy good books and movies and time with family and beautiful vistas and trips …. It’s amazing what life has to offer you when you are willing to look past the daily humdrum stuff.
I am obsessed with audible.com. I love getting in the car and disappearing inside a good book ~no stressful vision required. I’m completely addicted and cannot rave enough about how amazing the written word is ~ I remember my mum reading aloud to Dave and I as we grew up, and she gave us such a precious gift. I am forever grateful.
People are incredibly generous. Seriously. We were just given amazing news from our landlords ~ they are building us an outdoor patio area and mostly, we just asked. So often we defeat ourselves before even giving things a try. I love being surprised in the best possible way. I can’t wait to enjoy being outside with Lucy and the man and enjoying our gorgeous garden from our friends/landlords.
I am overwhelmed by my boss and his huge heart. Work isn’t always easy, and it can be stressful and crazy. But it’s exciting and fun and ever-changing, and my boss has been flexible as I’ve faced my obstacles and been nothing but supportive. He will probably never read this, but I couldn’t ask for a better leader, owner and friend. He has been incredible through all this, and I am eternally grateful.
And finally, to the man. I would be lost without you ~ with you, I am not alone, or scared, or overwhelmed. You make life all that it is. I cannot wait to promise forever to you, and I am so glad that you will be there to walk by my side and be my best friend, confidante and love for the rest of my life & into eternity. Thank you for getting me through this. I promise it will get easier.
Everyone has ups and downs ~ that’s a universal truth. And not one of us knows what it’s like to walk in someone else’s moccasins. My path has been tough recently, but I am clinging to the faith that things will get easier, I will get better and as I do so, I will learn more about how to deal with my moccasins.
Today, they’re pretty okay. I’m hoping that means I’m in the home stretch to feeling better.
in the good times, and the bad
This evening, Lucy and I are on our own. And that’s okay, because the man is pursuing a dream, and I get pretty excited when I think about that. So here us girls are, finally curled up on the couch, watching all my DVR’d episodes of “Dallas” (yup, I will openly admit it ~ complete guilty pleasure!).
I’ve had a lot on my mind the last few days, but I’m not sure any of them are good blog posts. I took a bunch of pictures of the lunches I prepared for the man and I this week but I didn’t cook anything new or exciting ~ just clean food so we ate a good mid-day meal. Then, I thought about blogging about yoga, but I feel like I’ve been doing that a lot lately. So I’m sort of back at square one ~ yammering along as has become my recent trend.
Right now life is a whirlwind of wedding prep (59 days! wha?!?), new routines and work. When we look back at the nearly four years we have been living together, we are amazed at how far we’ve come, and the life we have built together. It’s exciting to be able to celebrate our fifth anniversary with our wedding, and be able to look back at the positive growth that has occurred.
We’ve worked really hard.
When we first got together we made a pact. We worked in restaurants, and our hours were crazy. It meant never really seeing each other and never having the ability to spend quality time with our families. We wanted normalcy, a routine. We were together a year before finding our current home, and when we did, we both worked Monday through Friday jobs, leaving our nights and weekends free.
Now, four years later, I am pretty proud to say that we both have great jobs, and have been really successful in them. We’ve expanded our family by adding our furry love, Lucy Lou, we’ve rearranged and redesigned each room in our apartment, upgraded things. I feel like a real grown-up! I mean, seriously, I make lunches for us for the week. And blend green smoothies every morning packed with veggies. Grown-ups do that kind of thing. When did this happen?
But at the root of all of it ~especially in light of the absurd amount of drama our wedding has stirred up (on both sides) ~ it all comes down to one thing. And I didn’t realize it at first, but I do now.
For the first time since I was eighteen, I am okay with who I am. I’m pretty weird (or, to be politically correct, unique) and I’m okay with that. I feel confident enough to say I know who I am, I know what I want, I know what’s important to me, I’m good at what I do and all of that is okay. In fact, it’s better than okay. It’s a relief. I think it’s easy to lose yourself, it’s easy to believe you are less than what you are, fall into a pit of despair, focus on negativity, eat crappy food … all that stuff. It’s a lot harder to stand tall and be proud of who you are, blemishes, eccentricities and all.
I spent years apologizing for old mistakes, worrying myself to death about how to prove myself (to people who weren’t really interested in knowing me anyway), attempting to prove people’s assumptions about me wrong. And guess what? Who cares about those people ~ those judgers and doubters and nay-sayers. They weren’t looking to help me succeed anyway ~ they were condemning me, and pointing it out to boot.
What I’ve learned ~ where I’ve arrived after the absolutely real, completely shit year I’ve ploughed through ~ is that I didn’t need them anyway. In the darkest moments, the people who had always been there were there again. They were the strength and encouragement and positive force I needed. There are a hell of a lot of truths revealed in the tough times (a person’s character is revealed, as one of my favorite quotes reads).
I also think with age, a person is better able to look at others and say, with a smile,” I just don’t care what you say anymore. I’m taking my own power back.” I’ve learned a lot of lessons in 2013 ~ bad news can help you make positive changes, my mum is a super hero, sticking with something through the hard times can actually pay off, don’t be afraid to ask for what you need … my list is actually pretty long.
So to wrap up yet another ramble ~ I like me. And experiencing that moment changes life. I wish that everyone gets to that realization and feels as liberated as I did. It’s nice to be comfy in one’s own skin and know the real truth of one of the best sayings ever.
You can please all of the people some of the time, some of the people all of the time. But you can’t please all of the people all of the time.
It’s better to be able to sleep at night knowing you’ve lived your life in conjunction with who you are and what you value. Much better.
the tortoise
Last Friday, I took a hot vinyasa class, and a lot of what the instructor said has stayed with me … especially this week as I began exploring a new style of yoga that focuses much more exclusively on the physical aspects of practice.
The instructor – a very knowledgeable man – told us, as we held triangle pose for what felt like eternity, that so often we all focus on getting ‘there’ ~ as though ‘there’ was a place. He emphasized that there is no ‘there’ ~ there’s only ‘here’ and if we push ourselves to take big strides our progress is often stalled or impeded … rather, one should focus on small improvements and adjustments. Sort of like the tortoise and the hare ~ slow and steady wins the race.
I held on to that idea this morning. My body was sore, and I felt overly exhausted (I’m learning this is pretty standard when I shake up my routine and try to incorporate something new). But I got myself up and made it to class. And once I was on my mat, in the heat of the studio, I reminded myself that my goal for this morning was to improve on my performance from yesterday’s class. Which, much to my surprise and delight, I did. Despite my fatigue and muscle sore-ness.
Hugely satisfying. I knew I liked tortoises (and turtles!) for a reason. We are of a like mind.
ups and downs
Sometimes I drink so much water during the day I feel as though I could float away. This ended up being a blessing in disguise yesterday, when I embarked on my latest personal challenge.
Last fall, out of what felt like nowhere, the yoga studio I had been attending closed it’s doors.. I was dealing with the diagnosis process of MS, things with my mum and the ramp up into the holidays (our party, my birthday, the restaurant) so I didn’t go out of my way to find a new studio. I’d practiced intermittently for years and even then was only prioritizing one class a week.
When I finally got back to class ~ after all the seriousness of January and chaos of February~ I’d found my old teacher, but I wasn’t completely in love with the studio. And I also knew that my practice wasn’t going to progress going to class once a week. I knew that I had to figure out what I wanted to accomplish, and make the choices necessary to get there. I knew I could, because I’d done it before.
Last year, I decided I wanted to run Broad Street. And I did it. I wasn’t able to do the half marathon in the fall (too many physical issues … which makes me feel like an old lady if I think too much about it!) but I will do it one day. If ever the passion to run comes back.
So, after some discussions with the man (who is beginning his own journey this evening and I’m SO excited for him!) I chose a studio about five minutes from our abode, and am on day two of my 30 day unlimited class pass. My goal is to go once a day (other that this Saturday and Sunday because I’m getting my hair done, and it needs 48 hours of no sweating ~ keratin is high maintenance but oh.so.worth.it.) I feel as though being dedicated will help my practice progress as well as help me stay strong and flexible even as my body does funny, weird and inexplicable things.
I decided last night, that since I was getting all kinds of crazy, I would try hot yoga. Aka Bikram.
Wow! Bikram is a whole new world. After class last night, I was commended for what a great job I did, and for not getting sick. Literally ~ the instructor actually told me as I was hobbling out of the studio that multiple people stopped to say how they were impressed with the new girl for not getting sick and making it all the way through class. A huge compliment, but also, to me, hilarious. By the end of class, I was giving myself an internal pep talk … you can do this, hang in there, you can do this, breathe through it.
When I first walked in the room, I was immediately shocked by the temperature. I had never been in a studio that hot, and I realized there is a huge difference between hot vinyasa, and traditional hot yoga. It’s a totally different atmosphere. It’s also interesting how the focus is different ~ the moves are done in a specific order, there’s no meditation or introspective thoughts ~ it’s breath, balance, heat and a lot of sweat. All that water I mentioned above? I sweated it all out!
This morning was an express class ~ in usual hot yoga or Bikram classes, each move is done twice, for a minute on each side, and then again for thirty seconds each. Class lasts approximately ninety minutes. It’s looong (or at least, it feels that way). The express class does each move once, and I’m not sure if it’s because I had just done a class the night before, or if my body was just exhausted from Lucy and my morning walk. Either way, this morning was rough.
Which only motivates me more to go to class every single day until I can make it through and hold the poses. It’s always scary — for me at least — to try something new. But I’ve been proud of myself for going outside my comfort zone and being proactive. It’s easy to talk about the things I want to do or accomplish ~ it’s much cooler when I actually do it.
sincere effort
So, I’m sitting here and I’m trying so hard to compose something about sincere effort ~ because I loved the idea during class tonight, and I think it really pushes you to be brutally honest with yourself. It’s super easy to think you’re always sincere in your effort ~ in your actions. Buuuuut … when you get right down to it, there are times when we all phone it in; when we go through the motions.
The past few days have been really tough for me. All the really “fun” side effects of my new meds (which I’d sincerely hoped wouldn’t exist for me ) have reared their ugly heads, and even going through the motions has posed a challenge.
So having a moment to focus on my actions, and the motivations behind them was really helpful tonight. I’ve been frustrated and angry by what I’ve felt is my body failing me. My mind failing me. Taking a step back and re-committing to positive thinking and sincerity in what I do was more necessary than I realized.
Even though MS teaches me something every day … about what I’m capable of, what I’ve taken for granted in the past, the daily lessons of patience & tolerance ~ there’s so much more to my life than MS. There are a crazy amount of exciting and challenging things happening (not to mention the man and my wedding!) that it is easy to get distracted, run down and jaded.
And in the past few days, as I’ve fought my frustrations and set backs, I’ve lost track of myself and my commitment to being strong and upbeat; meeting the ‘road bumps’ of MS head on. I’m tired tonight, and my body is exhausted. I want to be able to write coherently about how comforting tonight’s class was ~ how much lighter I felt afterwards, thinking of class’s meditation.
But the truth is, I wouldn’t be putting sincere effort into this post. And even though I’m going to hit publish at the end of my rambles, please do as I say, and not as I do.
When I do put my full effort into something, I feel much more fulfilled at the end of my day ~ as though I spent my time in a worthwhile way. And I’m writing this post so I can remember today’s lesson in sincere effort. Even when I’m doing a little bit of ‘phoning in.’
the other side of the coin
I tend to find time to share my thoughts when I’m feeling good, and positive and strong. I’m feeling none of those things today, but in an effort to share my MS journey, I thought it would be fair to share a day like today.
Last night was my third injection and while in certain ways it’s getting … well, easier? … the dosage is also getting larger, and therefore, unlucky for me, the side effects are getting stronger.
Today I’m tired, and discouraged … and oddly, overwhelmingly sad. Anyone who has struggled with depression will understand the feeling of … well, almost helplessness in controlling your own emotions. Every part of my body hurts ~ like the pain of a good workout, but not good … like the flu has invaded every muscle, every joint … every sensitive nerve ending in my skin. I’m hot, I’m cold, my jaw aches, my head aches, my eyes burn.
It has taken incredible effort to do normal, everyday things. Getting up, making smoothies, taking Lucy out … showering, dressing. All of it feels earth-shatteringly difficult and tiring.
That’s the thing ~ the exhaustion is all-consuming. Even with proper sleep, and diet and exercise … I am constantly in a state of nearly debilitating fatigue. It’s enough to make a person depressed even without all the other fun elements of MS.
So that’s today for you.
a little thought
“…feelings like disappointment, embarrassment, irritation, resentment, anger, jealousy, and fear, instead of being bad news, are actually very clear moments that teach us where it is that we’re holding back. They teach us to perk up and lean in when we feel we’d rather collapse and back away. They’re like messengers that show us, with terrifying clarity, exactly where we’re stuck. This very moment is the perfect teacher, and, lucky for us, it’s with us wherever we are.”
― Pema Chödrön (** bold is my choice ~ I love the image of leaning in)
Just a little share today ~ Marissa (my amazing yoga teacher) read two quotes from Pema during class yesterday and they really stuck with me. Unfortunately, my copy of the book won’t arrive for a few days, so I chose the quote above to share. I will say that researching Ms. Chodron made me aware of how wise her words are. I’m looking forward to further exploring her ideas when my copy of “The Pocket Pema Chodron” arrives.
Until then, here it is again ~ the idea of the strength of language.
I like it.











D5 Creation