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Day 32

Sometimes, it’s stark the clear difference between what is imagined and what is reality.

I dreamed of sitting curled up in my new reading chair (aka, Lucy’s chair), sipping a hot beverage, reading my book as the snow gently fell all afternoon.  I thought maybe I would write a little because the mood just seemed as though it would be conducive.

I *am* curled up on my reading chair, I *have* read some of my book.  But it’s been another strange day — even the snow has been strange.  Sometimes clattering against the windows, sometimes so fine it’s barely visible.  Sometimes swirling and dipping as if a squall has taken hold.  I haven’t been able to settle my mind, my thoughts, my self.  I’ve been intermittently hungry, thirsty, cold, uncomfortable and needing the use the bathroom.  There has been no rhythm.

I feel beaten up with no discernible reason to feel so; raw and skittish and afraid.

Once, a long time ago, I sat on a park bench on a cool summer evening.  The trees were green and the sky was clear, the stars twinkling.  My friend and I had gone to dinner and were just sitting there for more time to talk before the evening eventually ended.  He and I had recently graduated from high school and I thought we’d be friends forever.

We talked about many things that night, but there are two that still linger in my brain, twenty odd years later.  He said character was who we are in the dark.  And then he said, the only that that is constant is change.

We aren’t still friends, which makes me feel a touch sad at times.  He went on to become a professor of philosophy and has published several books.  He seems happy — what I can tell from the distance with which I now see his life.

But he profoundly changed how my mind worked that night.

And as I sit here today, the weather unpredictable, John’s schedule unpredictable, my legs … unpredictable.  I think about those two things … character is who I am in the dark.  Or perhaps, just alone, without any witness.  And even though I cling to routine with an iron grip, the truth is that life will keep changing and morphing.  And what is up will one day be down.  John will change and evolve and I will change and evolve and we will grow and change together.

The more I fight the change, the harder I make it for myself.  I need to just breath deep, and enjoy the ride.

Xox, g

Day 24

There was a plaque that hung next to my mother’s bed for most of my young life (probably all of it).  It was made for her by a friend named Jo Wilson who lived in Montana.  I grew up knowing who Jo was because it was a trip to help Jo care for her two young children that inspired my mother to want children of her own.  The plaque read “Change Your Thoughts and You Will Change Your World.”

I have since learned that this quote was authored by Norman Vincent Peale.  I learned this after my mother’s death when we were designing the pamphlet for her celebration of life  and we chose to include it.  Funny how something can influence your entire existence and yet you only learn its provenance when your mother dies and you need to put something together to commemorate her.

It’s how my mother lived her life.  It’s how she taught David and I to live ours. I don’t think it was always easy for her.  It certainly hasn’t always been easy for me.  And yet, it does magically give you perspective when you desperately need it.  Change your thoughts; change your world.  Whether intentionally or not, she laid the seeds in both of us to consider and learn about Eastern philosophy. The power of the mind.  Intentions.  Positivity.

I believe that life is a series of choices.  And we control our fate.  How we frame things, how we choose to feel … not just the obvious choices but all the tiny ones in between.  Do I choose to be sad all the time about the hand that I’m playing in this game called life?  Do I choose to greet each day as a blank slate, ready to be filled with knowledge and wonder?  I believe that I have that choice.  I don’t believe it is all written for me.  Maybe there’s an outline, maybe fate plays a part, but my choices determine my outcome.

Sometimes I didn’t even know I was making choices.  But I was.  And here I am now.  Nearly a whole month into a new year.  Making choices big and small every moment of every day.  It’s truly awesome to contemplate.

Change your thoughts and you will change your world.  Yes.

Xox, g

Day 23

I try to write before the end of the day because by now, I’m tired and all I want to do is go to bed.  But I made this promise to myself, this New Year’s Resolution.  And I’m not ready to give up just yet.

So here I am.

Last night we wrapped our evening at 8pm because I was just emerging from headache hell and I couldn’t keep my eyes open.  I slept for nearly eleven hours.  My body was wiped.

This morning we lounged around the house, reading books, listening to vinyl, talking about life and philosophy and the “Big Questions.”  I feel immense gratitude that J+I have these kinds of conversations regularly because if he wasn’t here to talk to, I don’t know what I’d do.  I thought, while we talked, what great seeds of ideas it all was for a blog post.  But now, tonight, as I sit here, my mind is blank.

Being ‘sick’ is exhausting.  It’s unrelenting.  It sneaks up on you when you let your guard down.  It’s tiring — which is a completely different thing than being exhausting.  It’s … it’s just really hard.  And it never stops.  And that wears a person down.

Sometimes I’m at a loss as to how to rest enough to feel recuperated.

But I’m here and I’m typing and I’m editing sentences as I go.  So, there’s something in that.  I didn’t miss another day because I got distracted by lethargy.

Xox, g

Day 20/5

Today, Joe Biden from Delaware (Scranton) became President of the United States Joseph R. Biden, the forty-sixth man to hold the office in the nearly two hundred and fifty year history of America.

It has been a strange day in our house.  Yesterday evening, we found out our neighbors have both tested positive for COVID with no clear idea how or when they were exposed.  Making it even more troubling/puzzling is that one of them had already begun the vaccine process.

Anyway, now, nearly twenty-four hours after receiving the news, I feel less anxious and scared; instead I feel resolute, determined and stoic.  We decided to self-quarantine (JIC) which has been something of a challenge and strangely exhausting.  My question for the universe … who exactly is following COVID protocol and guidelines?

I ask because both my doctors offices were unsettling blasé about the news, making rescheduling challenging and frustrating.  (Not to mention strangely shaming me for my hyphenated last name?! …) Our families reacted with various levels of concern and care, even stating at one point that we were probably fine.  (Thank you Doctor Family Member).

It isn’t that I wonder if we’ve been exposed or are sick — both are possibilities.   What weighs on my mind is the fact that our neighbors have no idea how they came to get it.  And they are diligent about isolating and staying home; they have been since early last year.  So … that’s … worrying.

Anyway, between phone battles with schedulers, I sat down and watched the first woman elected to high office sworn in as the Vice President of the country.  I cried.  Even if I hadn’t wanted to I would have because it was profoundly moving.  I wished my mother was there to see it, but I also knew that she was and she was proud.  Funnily, Judge Sotomayor mispronounced Kamala and I felt a surge of understanding and recognition as Ms. Harris didn’t get phased at all, but rather took her oath of office with poise and aplomb.

We are in dark days as a country.  Today marks a change in leadership but I can’t say for certain if it marks a change in the momentum of the divide growing larger and louder among our citizens.  All I can have is hope in the ideals of America.

It was a strange day today.  I can’t focus my mind, I drifted through the day.  I am tired and simultaneously wired.

Strange day.

Xox, g

 

 

Day 19 /4

It’s an interesting phenomenon, leaving social media after spending so many years affected by its ebb and flow, its plethora of messages and guidance on how to be the best version of myself (according – oftentimes – to  people I don’t know). Social media created an entire world where some people have bigger voices that reach farther, that carry more heft.  It is a world, an environment, that has a different set of rules than other, more personal arenas.   It empowers some while silencing others; it manipulates reality with algorithms and targeted marketing.  It is a sub-culture of reality.  It is simultaneously trivial and powerful beyond measure.

The weight of the civil rights movement in America in mid-2020 felt heavier every time I scrolled Instagram, every time I was ‘reprimanded’ for not doing it right, for being too privileged, too white.  There were lessons in that that I could not have learned any other way while being confined to my home in my safe, affluent, white corner of the world.  Uncomfortable, essential lessons about perspective, about power, about motivation and greed.

But other movements, other ‘lessons’ felt less significant and yet equally powerful.  And that is the rub of social media.  Did I post the right photo of Dr. King and say the right thing about his messages (particularly as a middle class white woman … ).  Did I acknowledge whatever is happening in the world with due respect?  Did I state my position and take a  side?

Should I have to?

I didn’t think about it until my meditation this morning (a special meditation by  Chelsea Jackson Roberts on Peloton in honor of MLK Day yesterday).  But instead of spending time agonizing over being ‘correct’ all I did yesterday was acknowledge and think about Dr. King and his influence and impact on civil rights in America.  And that was freeing.

I won’t lie, I miss Instagram.  I miss my friends and I miss posting pictures about the mundane details of my life.  Even if no one actually cares.  Haha!  I miss documenting my Peloton and Sculpt journeys.  I miss having conversations and messaging with people every day.

But I don’t miss the peer pressure.  I don’t miss the angst and the controversy.  I don’t miss the comparisons and the judgement.

Will I go back?  Probably.  When?  I’m not sure.  I have a date marked that I want to get to and after that I’ll reevaluate.  But it is funny how the further away from something you get, the less powerful its pull to return.

Xox, g

 

 

Day 18 (Day 3)

I think, in a lot of ways, we all fancy ourselves adventurers.  Ready for wherever the clues lead us, wherever the wind blows us; up for anything new and exciting.  Especially now, when there are so few opportunities to do something out of the ordinary; so few opportunities to go new places, try new things.

I used to fancy myself flexible.  And today I was reminded, with forceful clarity, that flexibility is no longer a well honed muscle in my arsenal.  Maybe … and I haven’t thought long enough to say for sure, but maybe it never was.  I just wanted it to be.

The idea of that is humbling, frustrating and depressing.  To realize that something as small as a Monday holiday (MLK Day) could so drastically throw me off my game.  Mondays are my re-set day.  They are the foundation of my week.  They are the grounding of my daily life.  And today wasn’t that.

Today should have been a great day.  A day full of fun and relaxation, no responsibility, no to-do list.  Just John and Lucy and me.  And adventure. Instead it felt claustrophobic, suffocating.  Where was my gym time?  Where was my office time?   Is this the reality of my life without work?!? FOREVER?!? 

Or is it the result of COVID?  Tipping this carefully crafted existence that keeps me sane; that is delicate and sensitive and can devolve into a tailspin with the smallest of deviances?

Am I gripping so tightly to routine, to normalcy, that anything that unbalances it I view as a threat?

I fall into deep abysses  of meandering thoughts; thoughts about existence and my place in the world, anyone’s place and purpose in the world … and come up with nothing.  Why would a change in schedule so profoundly change me, alter my mood and state of mind?  My energy presence in the world.

I have a million questions about life, its purpose on a macro and micro level.  Why we do the things we do as humans, the purpose of it all.  I have all these big, deep thoughts and then Martin Luther King Jr’s holiday wacks me so far out of orbit that I lose myself.

What is happening to me?

Xox, g

Day 16

I woke up with a start in the middle of the night, panic surging to my heart because I somehow remembered in my sleep that I didn’t blog yesterday.

We went to bed after midnight so even if I had blogged before bed it wouldn’t have been the 15th anymore.  We don’t often stay up that late but sometimes it’s a much needed release to just ‘break’ the rules.  I know the prices I’ll pay (and I did pay them today) but somehow, it felt worth it to just stay up late, curled on the couch, watching (really bad) T.V.

I put a lot of pressure on myself to fulfill goals I set.  I think it has to do with the amorphous nature of my days without a paying job, the consequences that I feel so quickly because of my M.S. and also, the fact that I was easily dissuaded and distracted when I was younger.  I would make bold declarations and never see them through.  I don’t want that to be my legacy.  So when I decide to do something, I want to stick with it.  Missing day #15 of my year-long blogging challenge was a huge, huge disappointment.

And then I remembered that that only person really reading this blog,  or keeping track of when I’m writing, is me.  And just like the Peloton, missing a day doesn’t erase everything.  It just means getting back on the proverbial horse the next day.  I tried quitting drinking So. Many. Times.  Until one time it just stuck.

I believe in the idea of doing something for 66 days to create a habit.  It’s worked for me every time I’ve tried it.  So I missed yesterday … while letting loose and enjoying being a little irresponsible after a wicked year, a strange holiday season, and one of the worst weekends of my life.

What matters is I came back today.  And I’ll come back tomorrow.  And I’ll just keep writing and keep being disciplined and just like biking and Sculpt classes and yoga and drinking and quitting smoking … at some point, it will just stick and be part of who I am, and the rhythm of my day.

So here’s to Day 16.  Or Day 1.  Whichever.  Here’s to just being here.

Xox, g

Day 14

Sometimes my mind is overflowing with questions, contemplations, things I want to dissect and discuss.  Other times, it’s just … blank.

Writing every day is an exercise many writing ‘gurus’ recommend.  Sitting down and putting pen to paper (fingertips to keys) builds habits, builds routine.  Builds familiarity with pushing through when nothing is there.

It doesn’t make it easier, no matter how much I tell myself it’s beneficial.

Two days ago during my therapy session (done via computer, obv) I basically word vomited for an hour about the frustrations of family; the difficulties that I cannot seem to overcome or transcend when dealing with my in-laws.  My therapist suggested that the theme, or rather, my theme, something she hears over and over again, is the struggle to please people, to be accepted by people who just … don’t.  And that this narrative — of not belonging, of always feeling less than, or somehow wrong — seems to underline a lot of the large story arcs of my life.

That’s a mind f*ck if ever I’ve encountered one.

So … do I create this martyrdom that I seem to habitually inhabit?  Do I see things, hear things, infer things that aren’t actually there?  Is the problem intrinsically mine?

I don’t know.

I know that two people told me in very rapid succession (and two people who do not know each other … they just both know me) that I need to love myself enough and accept myself enough that the rejection of others doesn’t weigh so heavily on my shoulders.

And here is where I struggle.  I thought … up until this very week, actually … that I *did* love myself.  That I *did* think I was pretty cool.  So to hear that in fact, I might not (or I might not enough) is just ….   Well, it’s a huge roadblock, it’s the biggest distraction, it is the shining light that is currently blinding me.

How do I love myself enough to transcend the continuous rejection that I experience from others?  I don’t f*cking know.

Xo, g

Day 12

Y’know how some days just feel a lot heavier than others?

That’s today for me.  Maybe it’s the residual effect of our weekend away, maybe it’s family dinner from last night.  Maybe it’s the pain & frustration of another day with MS.  Maybe it’s America & her government.

I don’t know.  Today just feels … awful.  No rhythm.  No comfort.  Nothing.  Just interruptions and fire drills and worries and sadness.

I am grateful for my house.  My office & my gym.  Heat.  Food in the fridge.  Comfy clothing to put on after a shower.  I am grateful for the knit blanket I won on an Instagram giveaway.  I am grateful that I can walk most of the time without aid.  I am grateful for health insurance and access to doctors.  I am grateful for my Neuchâtel chocolates (given to me last night by my Dad).  I am grateful for my husband and for my puppy.  I am grateful.

I am grateful.

Xox, g

 

Day 8

It’s been a weird day for me.

I’ve really, really struggled. Putting on a happy face has been nearly impossible.  I failed multiple times.  I snapped, not reacting properly or saying the wrong thing.  I let my guard down and was myself instead of the caricature of myself that I inevitably play in these situations.

The thing is, some humans just don’t understand other humans.  And even if it isn’t meant or isn’t intentional,  things are said and meaning is implied and feelings get hurt and everyone is unhappy, misunderstood and exhausted by the end.  Over it.  Spending time with people who just aren’t compatible with you wears on you.  After years your nerves are exposed and raw and tired.  And the charade gets harder and harder.

We are in the throes of one of the toughest times in our country’s recent history.  Politically, socially, economically.  We are all tired.  We are all feeling a little bit on edge.

Anyway.  I can justify it all I want but today was a tough one and I was not my best self.  And that’s all, really.

Xox, g