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tiny miracles

It’s been a tough year.

Well, possibly more than a year at this point.

It’s been a struggle.  For a million and one reasons, but a challenge.  Everything I tried to do took triple the effort that I remembered it taking in the past.  And it all wiped me out ~ like, lights out at 8pm on a Saturday wiped out.  My head felt foggy most of the time ~ like all the sharpness that I’d once possessed looked like the nub of a well-used pencil.  Things I’d always taken care of seemed unimportant ~ as though laundry, or vacuuming no  longer mattered.

There didn’t seem to be solutions, answers ~ any sort of path.

And then ~ we tried the fourth medicine.  And I no longer felt like I was having mini-strokes, I didn’t have huge welts and bruises all over my arms and legs, and depression didn’t seem to be overwhelming my life anymore (all previous, debilitating side effects).

And then, after weeks of yoga ‘therapy’ I was suddenly able to do dancer’s pose again ~ my teacher had found a way to modify practice so i felt like I actually was practicing.  And I can stay up until 10pm on a weeknight and still get up at 6am for work.  And even though my legs are still numb and sometimes I can’t hold my right hand steady (among other things) I can take Lucy out at night without fear of falling down, and get out of bed without falling into the wall, and work a full day and remember  everything the way I used to.

It’s as though the fog is lifting, and I’m capable of doing things again, and capable of maintaining my life while still doing my job.  I might not ever run a half marathon, or be able to climb a rock wall (possibly something that used to be on my bucket list after Camp Henry in sixth grade) … but I know I can function.  And I can still practice yoga.  And I can still cook, and write and read and swim (again, among other things!).

I feel as though I’m surfacing again after a long time drowning.  There were a lot of band aids over the course of this journey, but nothing felt like the light at the end of the tunnel until now.

It’s nice to feel a little like myself again.  It’s like the ultimate sigh of relief.

reading

As I was driving home today, the roads thick with traffic, my mind started to wander.  I’d begun my audio book of “Harry Potter and the Deathly Hallows” for the second time (I haven’t found anything new on audible recently, which is a huge bummer) and I began to think about the magic of reading.

When I was younger, I was a total book-worm.  There was something so incredible about getting lost in a good book ~ a world somewhere else, that totally took you away.  I’ve had moments in adulthood when I’ve been completely overtaken by a book.  I’m not ashamed to admit that I loved the ‘Hunger Games’ trilogy and theDivergent’ trilogy.   I also was completely enamoured with Elizabeth Gilbert’s ‘The Signature of all Things.’  Stunningly beautiful.

We moved a lot when I was young, but I remember libraries.  My mum always took us to libraries and I would get completely wrapped up in the young adult section, piling up the titles I wanted to take home, only to have to weed through and pick a select few (which I would read in a matter of days).  Books were my salvation, but they were also my teacher. So many things could be learned by reading books, exploring faraway people and places. Igniting the imagination to infinite possibilities.

When life gets crazy, or stressful, I find such beautiful relief in my audio books.  I miss that I don’t take the time to read ~ that I haven’t taken the time in so long because life seemed to get in the way.  I’d like to get back to it, get back to myself.  I read a brief newspaper article today about MS, and remembered when the numbness in my feet first started.  Remembered thinking and wondering if I would ever feel them normally again.  The answer, sadly to this point, is no.  But so much has happened since that day and I’ve lost little bits of myself because of stress and work and the ebb and flow of life.

I’d like to get back to reading.  I guess that’s my point.

story time

This past weekend, the man and I were up bright and early on Saturday morning because we had to be at the hospital for some tests by 7.30a.  Meh.  The sun was stretching its way across the sky as we drove in the murky early morning to the city.

As we navigated the streets very close to our destination, we found ourselves behind a car sitting at a green light, waiting to make a turn.  The man gave a friendly tap on the horn just as I realized there was a red arrow.  Whoops.  The driver’s arms were waving and there was no way to communicate that we’d made a mistake.

Except that we followed them the entire way into the parking garage of the hospital, and we ended up in the same waiting room with them, half asleep and filling in forms for testing.  The man felt it necessary to apologize, which he did to her strong retort of “It was a red arrow!”  Ce la vie, right?  We’d done what we thought was best.  Now on with  life!

Over an hour later, as I shuffled back into the “Ladies Gowning Room” (sounds swanky right? haha), the same girl greeted me.  She did a little bit of a double take, and then, making the decision, turned to me.

“I wanted to apologize ~ my husband was giving me a hard time for being such a bitch.  Your husband came over to apologize and I should have been more gracious ~ so, thank you and I’m sorry!  You guys must not be from Philly ~ I said that to my husband after you walked away ~ no one from Philly would have apologized!”

I smiled and laughed a little, admitting that neither of us were originally from Philadelphia but we lived here now.  I assumed she wasn’t from Philly, as her car had New York plates, but she said she lived right around the corner. So it was an interesting remark.  She was very nice and we chatted a bit after I put on normal clothing again (nothing seems to diminish a person more than the sexy gowns and socks required for hospital testing).  It was a nice way to end the whole exchange.  Human beings never cease to surprise.  And being nice pays off every once in a while.

where I am

Often, in the evenings when I’m curled up on the couch, i want to write something here, but I don’t.  There’s no good reason other than laziness ~ the man built me a desk to work from home, so my computer is now (gasp!) across the room. And when I’m very snuggled and comfy the inclination to get up … doesn’t really exist.

As I have written before, the man and I made no elaborate New Year’s resolutions, or had any expectations for this newest year.  Which, in retrospect, may have been a blessing.  At least the dismal nature of these first few months of 2014 aren’t additionally disappointing in regards to any expectations.

When your back is up against the wall, when legitimately everything feels difficult… I think that’s when your true character comes through.  I can’t say much for mine (first, because that would be weird, but also because I don’t think a person can speak to their own character, only others can).  My husband has been nothing but a positive force throughout our woes, full of the upside, of ideas, of encouragement … full of the bright side of life.  It wasn’t easy for him either, and I selfishly wallowed in my own stuff rather than being a good partner.

But I feel as though we’ve definitely been in a valley for a while, and it’s infinitely comforting to know that I have a partner in this journey who loves, understands and supports me no.matter.what.  That even when life feels like a real battle, he’s in my corner, he will fall asleep holding my hand and kiss me good morning every day when our alarm begins to ring.  He’s a man who supports me at work, in my creative endeavors and through my newest medical challenge.  Even if things are brutal, I am more than lucky to have as my person.

That sentiment extends to my crazy family, fantastic friends and lovably quirky co-workers.   Even on the toughest days ~ when our health inspection for the new restaurant is postponed again or I have new, highly inconvenient symptoms ~ I am blessed to have a core group of seriously awesome people in my life.

People who ask why I haven’t blogged since February 23rd ~ who remind me that writing is my outlet, my therapy … my honesty in black & white.  So this is my step back  … I can’t guarantee the next few posts will be good.  But I can guarantee they will exist.

snow day

Today, as the flakes thickened in their race to the ground, I made my  escape from the office at 11am.  It wasn’t a terrible drive home ~ the roads weren’t super crowded but they also weren’t very good.  Zoinks.

My amazing husband was already at home, and had shoveled the driveway three times!!!  So all the crazy driving and abandoned vehicles and fender benders melted away as we made a nice comforting lunch of scrabby eggs and smoked salmon.  I admit that as the snow fell fast and furious this girl worked (and got a lot done, btw!).  But we also re-watched Silver Linings Playbook  and enjoyed a nice bottle of red (after I OD’d on tea).

Our friends (and landlords) invited us over for dinner and as usual, they put forth an incredible spread.  We chatted about life, and restaurants and film and food and wine as the snow continued to fall.  It was a gentle almost other-worldly magical.  Sometimes life happens like that.

I love snow.  Not for the standard reasons ~ work, and having a day off and all that.  Those things don’t really exist in the restaurant biz.  I love the quiet and the beauty ~ the excuse it gives us to all be at home and enjoy each other, and be snuggled and warm.

Today was good day.  Til tomorrow.

updates

Whew.  It’s been awhile since I’ve been here.  In the time I’ve been away I have been to the doctor, done a whole course of antibiotics, gotten an official raise (with a start date!), cleaned out all my kitchen drawers (the man did the cupboards) and made a delicious gluten-free macaroni and cheese (based on my mum’s recipe which can be found “In the Kitchen”) using quinoa pasta, gluten-free flour and oatmeal for the breadcrumb crust.  Delish.

I was re-visiting some of my recent posts, and thought it might be fun to do a little progress report.

In regards to being unplugged, I’ve found a nice little balance, and while I have moments when I really miss having easy access on my phone, I’m mostly glad that I’m restricted to my iPad and having a wireless network.  Makes me focus more on being in my life, rather than sharing a perspective of my life.  The thing is, some people have a real grasp of social media, and share so intelligently … and some people just aren’t as artistic.  I fall into the gray middle area (in my own opinion … I don’t think I’m always completely lame … But I’m certainly pedantic some of the time).  Having such easy access meant that sometimes, instead of enjoying something, I was more worried about ‘sharing’ it.  And that was the ultimate lame feeling for me, personally.

So that’s that.

Interestingly enough (on the subject of a recent blog about my twenties), an old co-worker was brought in for an interview with my company on Friday.  It was actually a little disheartening in terms of how it all played out.  I realized, in how this person reacted to me and treated me, that they had little to no respect for me as a person in the work force or even a human being.  I felt as though the bad choices I’d made were staring me in the face and while it brought me relief to know I’d climbed out of that part of my life, at the same time it didn’t make me feel very proud.  But as I chewed on it over the weekend, I came to some good conclusions ~ how I’d learned and grown and how this person didn’t seem to have progressed very much from the person I knew nearly eight years ago.  And while there was and remains no need to make a judgement in regard to anyone else’s life or accomplishments, it did  help me feel proud of the journey I’ve taken, and the things I’ve achieved.  I could have stayed that person eight years ago ~ lost, insecure, unsure.  But I didn’t.  Despite having some big challenges.  I became better than that.  In re-reading my post from earlier this month, this little occurrence has only reinforced how far I’ve come.

Next up: work. Work will always be a roller-coaster.  But my company celebrated the four-year anniversary of opening our doors on January 16th.  It seems crazy to me that I’ve been on the ride since the beginning ~ not only on the ride, but a  crucial element.  As downright frustrating as it can be at times, I’m also enormously proud of what we’ve accomplished and become.  And to be right on the cusp of opening our second location ~ very fulfilling (and completely exhausting!).  As absolutely devastating as some days can be (and trust me, they are) ~ in the end it’s so incredible to be able to take such ownership of something that began as a small space on a corner and grew into a staple of the city’s casual dining scene.  It’s just cool.

I had such a fun conversation with my Mama tonight, and it reinforced that she is the most wise person I know.  I was hemming and hawing about yet another conundrum (I believe I make myself a magnet for them) and she laughed and said (and I’m paraphrasing) ~ Life is hard.  For most people.  And we just have to take the cards we are dealt and get on with it.  It doesn’t help us any to over-share or wallow in our issues.  It’s better to have just a little bit of the old British stiff upper lip.  Of course if you find yourself in a place when you need to unburden, then you have those people in whom you can confide.  But there’s no need to share every trauma.  It doesn’t help anyone.  

She’s right.  I mean, I think it’s important to be in touch with and aware of your own personal struggles ~ but her words echoed a doctor who gave me some advice about my MS.  He said his sister beat breast cancer five years earlier. And she had all the tee-shirts and water bottles and bags and did the events and fundraising.  And he finally said to her ~ you’ve been cancer-free for five years.  You are defining yourself by a disease you beat.  And I support wearing the gear for an Awareness Walk, but not to define who you are.  You had breast cancer, it didn’t have you.   He smiled at me.  “Sort of like you have MS, but it shouldn’t have you.”  

Anyway, rambles.

Today wasn’t a bad day.  It was a pretty okay day.  Busy, and tiring.  But not so bad.  And I’m grateful for that.  Til tomorrow.

recovery

It’s been awhile since I’ve been totally wiped out ~ as in, bed all day and in and out of sleep.  But that was my day yesterday and for most of this morning.  Even now, curled on the couch as the sun streams through the windows … yeah, I’m still not feeling great.

So lame.

Remember as a kid, when being sick meant a mother or grandmother softly tucking the blankets around you, whispering softly that they loved you, making soup or toast or tea? It changes as an adult.  Luckily, I got sick on a weekend, so my husband tucked me in, whispered softly that he loved me and, when I was able to get up, made me pancakes for … well, the only meal I ate yesterday.

This morning the man headed out to run errands (he’s much more motivated than me) ~ I stayed at home, curled up with Lucy, half awake end half asleep watching an awesome Eagles (the band) documentary for the second time.  He takes stupid good care of me and came home with lunch ingredients, juice ingredients and other fun (yes, I said fun) things from the grocery store.

I think I’m a little loopy at the moment.

Which probably means that a doctor’s appointment is necessary.

It really sucks to be sick as a grown up.

por los buenos

Sometimes, it takes some harsh words to finally snap out of a funk.

I was daydreaming today about homes … which included a few (more than a few?) google searches and virtual tours and floor plans and gallery browses.  And since it hasn’t been the most uplifting week, I found myself falling deeper and deeper into self-pity.

Why wasn’t I where I wanted to be … why hadn’t I achieved what I wanted to achieve … why did everything feel so difficult, so challenging?

And then I wallowed some more.

Driving home, instead of listening to a good book and escaping into another world, I called the man and wallowed some more, sniffling and hiccupping into the phone.  He spoke purposefully but with compassion.  He said “Becoming miserable can happen to anyone. Staying miserable is our own fault.”

And he said it again as we met each other’s gaze over the kitchen island.

And I knew he was SO right.

The thing is, last year, as we launched into 2013, I thought so much about staying upbeat ~ about meeting my diagnosis head on and not allowing it to control me, or ruin me.

And then somewhere along the way, I lost that outlook.  I’m pretty sure it was when I broke my foot ~ which is sad, because that happened nearly seven months ago.  My attitude was compounded by other health stuff … which might have been triggered by my poor attitude.  Basically a vicious cycle of ‘ugh.’

Even just snapping out of it tonight has made me, in a small way, feel lighter.  It really is such a mental battle.  It’s about finding the positive, and working toward betterment rather than focusing on the negative and always seeing the short-comings.  I think being negative is so much easier ~ it stems from insecurity and feeling slighted or as though an injustice has been done.  It’s harder to always work for the good.  (Sidenote:  My acting teaching in college was big on ‘por los buenos’ … aka, for the good.  All character motivation was working por los buenos ~ something that helped make seemingly dark or bad characters have believable motivation and depth).  But the thing is, quality of life exists when focusing on life’s blessings rather than life’s curses.  And as difficult as that may be, I think with practice, it will get easier.  And hopefully both I and my beloved husband can find our way back to a better mental place.

cog in the wheel

Some days are harder than other days.

Recently, I’ve had a string of bad days and it’s hard to recover from that.

Last night I said to John ~ “Sometimes, after a difficult day, or a grueling meeting, when I catch a glimpse of myself in the mirror I’m surprised that I’m not the ugliest hag of a troll with no brain whatsoever.  Because after spending too much time listening to how certain people talk to me, it’s hard to imagine NOT being the dumbest, ugliest, most clueless person ever.  Since that’s how I’m treated.”  And that can basically sum up a certain percentage of my days at work.

I think we all probably have days like that.  And then we come home, and make a comforting dinner, pour a restorative glass of wine, curl up to watch “Downton Abbey” … and for just a moment, things don’t seem so bad anymore.

And then the next day arrives with frightening speed.  And it just keeps happening … over, and over and over again.

It’s hard not to find some of one’s identity in the work we do, in the days spent with the same people ~ not, perhaps people that we would choose to socialize with, but people who make up the bigger picture of ‘work.’  And our self-confidence comes from that, from how well we do our jobs, from the feedback, from the way co-workers treat and interact with you.

But then there are those moments, when work has been challenging and long and exhausting, and you’re finally done, and sitting around with the group of people you’ve put all the blood sweat and tears in with … and there’s a camaraderie and an understanding.  And you know that even if you get annoyed or frustrated or just plain sick of these people, in the end, you all have each other’s back.  You’re friends on a different level, friends who all “get it.”  And that’s what makes all the other b.s. worth it.

 

 

the underbelly

Sometimes my brain catches a thought, and starts rolling with it … and then all of a sudden, I’m remembering things I haven’t thought of in years.

It can be a good thing ~ a fun thing.  Remembering the neighbor’s yard when I was five, and the three large stones that as kids, we named.  Thinking about the forts that my brother and I built in his closet when we lived in New Jersey, or the games we used to play on the staircases ~ ravenous crocodiles and alligators lurking on the bottom steps.

On the other hand, sometimes I remember things I’m not really proud of ~ moments in life when I wish I’d made a different decision, said a different thing, walked a different way.  Those trains of thought are uncomfortable, and humbling.

Something I began contemplating this morning was the idea of friendship.  I have had my fair share of friendships ~ good, bad, superficial, meaningful.  I guess it applies to relationships, too.  Some of my friendships have ended because I walked away, some because I was left and some were just mutual.  But isn’t it amazing, as life keeps rambling along, which friends have been around for most of the journey?

And, more pointedly, which are not?

I like being in my thirties ~ I feel more settled, more focused, more true to who I am.  I think, for most of my twenties I forgot ~ and after I forgot, I allowed (or couldn’t control?) my insecurities to run rampant and make (many) terrible decisions.  I think ~ once you lose your direction, your focus ~ if you don’t have good people around you, it’s really hard to find your way back.

And for a lot of time in my twenties, I didn’t have very good people around me.  Well, that’s not entirely accurate.  I’m sure to other people some of my former friends were, are and will continue to be good people.  But they weren’t good people or good friends to me.  And as I thought about all of that today, I got really disappointed in myself.

I very clearly remembered having moments when I wondered what happened to me ~ what happened to the person I’d been ‘before,’ the things I’d cared about and valued.  Thinking about those years of confusion and darkness was almost… sad.  And, while it doesn’t make me feel a lot better, thinking it through now makes it easier to see how I’d fallen into such a bad place   Some people head down a bad path, and never recover.  Potential is lost, and a human life becomes a cautionary tale.  I think there was a moment when I could have become stuck.  But I didn’t.  And even though remembering some of the things I did and decisions I made make me want to crawl into  a dark hole and never emerge, I guess I’m also glad that a point came when i decided I was done wasting my life away.

Friends are important.  Of course, family is as well, but friendship is something different, something precious.  I feel as though I’ve finally arrived at a place in my life when none of my friendships are toxic.  In a way, it’s sad that women are as vicious as we are ~ on the other hand, I know that the friends I have now are real, and true.  And they know and like the person I am ~ not the broken shell of a person people took advantage of for most of my twenties.

I’m glad to be where I am now.  I think I might not have found myself here if I hadn’t struggled through my twenties, fallen a thousand times and finally gotten back up the thousand and first.  But thinking too hard about it still hurts a little.  I could focus on the positive ~ I got through it, am a little bit stronger, a little bit smarter and a lot more aware of who I am.  But sometimes thinking of how many bad decisions I made, people I trusted … shudders.

On the plus side, it was all in the past.  And remembering it will hopefully help me from making those mistakes again.