ruminations
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trends
I realized — while re-reading the past few posts — that I have been trending dangerously close to the ‘depressing’ line. Not what I want at all. But — and I’m sure you can understand this — it’s where I’ve been mentally, and it’s very hard to sit down and write honestly and authentically about anything other than the place you are currently in (unless you’re writing fiction — but that’s a whole different ballgame).
I’m not disciplined or trained in the art of writing. I’m pretty much just good at putting onto the page what I’m feeling in my soul. Sometimes it’s fairly light-hearted, but sometimes, it’s not. Life isn’t easy, and each of us chooses — to some degree — the experience we have. Being positive, thinking positively — so strong, so powerful. But sometimes, so incredibly difficult.
Sometimes, despite wishing and hoping that you felt differently, all of a sudden you find that your perspective has irrevocably changed. Something you’d once been deeply passionate about leaves you frustrated, irritated, disinterested. And you wonder — without much hope — how to find where you’d once been.
Anyway. I’m going to try trending toward the happy for awhile — hopefully it helps.
floating in fatigue
Fatigue is a funny thing. Sometimes it feels like you’re walking through water — sounds are muffled, your head doesn’t seem to work properly — everything feels slow and blurry around the edges. Other times it feels like you’ve had too many glasses of wine — loose, and happy and slightly off-balance.
I’ve become intimately familiar with fatigue over the past few years. I’d always struggled with feeling tired — something that is a strong symptom of MS, so it isn’t surprising, really. But the fatigue that comes with MS is so utterly all-consuming, it’s almost funny. And it comes in all shapes and sizes. I’ve gotten very used to feeling tired all the time, for everything. It’s all about pushing through — not allowing anything to manipulate your life so much it becomes it’s ruler.
Today the fatigue is so overwhelming I feel as though my brain is short circuiting. As though I am unable to focus on anything for more than a few moments. Everything feels foggy, and very difficult. Small things become huge efforts.
It sucks.
I’ve definitely found the beginning of 2015 to be a challenge. Maybe I just wasn’t quite ready to hit the ground running — maybe I needed a little bit of a respite before going full steam. I’m not totally sure. I just know that I feel stretched to the ends of my finger tips, the limits of my capabilities, the outskirts of my strength.
Tomorrow I get to go in and fill my veins with the poison of my drug infusion. I’d love to be indignant about turning to medicine as my savior (“Let food be thy medicine and medicine be thy food” comes to mind). But I’d be lying if I said anything other than I’m counting the minutes. Two years ago I was diagnosed with the knowledge of my disease and since then, it’s been a spiraling rabbit hole of symptoms and flares and relapses and ineffective treatment. To finally have found a glimmer of hope means that I’ve clung to it, focused on it, put all of my eggs (and everyone else’s) in one basket. And today I’m less than twenty-four hours away, and it’s almost as if my body is giving out in anticipation.
So, that’s me today. it’s the only thing I am aware of, the only thing I can seem to get my head around. Nothing else is linear, my thoughts are amorphous clouds ebbing and flowing in my mind.
It’s been a long day. And there’s still a long way to go.
the grind
And we find ourselves, as per the usual, back again at Monday.
Today wasn’t quite as intense as last Monday. Work still felt like I was wading through quicksand — really difficult and really slow. But I didn’t shake all day. I got things done, slowly and quietly crossing things off the list.
As I was driving home, listening to my most favorite app, audible.com, I began to think about who I am as a person. Don’t worry. It didn’t come out of left field — it started with my upcoming business trip. A quick trip to LA to eat some good food and help to bring shape to our newest restaurant concept.
We’re staying at a very nice hotel. Apparently, it has quite the pool scene (I imagine the MTV beach house — but that’s probably my imagination and my age). No spa though. According to the website, it’s 2 miles from a lot of things. I’m sort of at a loss as to what I’m going to do with all my free time.
This is where the afore-mentioned thought process began.
I’m a girl — woman, whatever — who listens to books about King Arthur on audible. I’m not listening to the ‘cool’ books, or the ‘trendy’ books. I’m listening to historical fiction or gentle portraits of a human’s life. There’s nothing edgy about me, I watch Newsroom on repeat, am currently binge-watching Madam Secretary [and wondering why I don’t do work every day that has a bigger impact on the American experience], and I love LoTR, Star Wars, Batman and Rocky. I go to bed before 9.30pm most nights. I like to talk about football, current events, history, food and books. I have never done drugs. Like, for real and I went to school for theatre and have been in the restaurant business more than half my life.
And I’m okay with all of that. I like me, I like the things I like — I find comfort in the choices I make and the things I enjoy. I’m not delusional enough to think that any of it makes me cool, or trendy, or cutting edge (which would help out in the business that I’m in).
But sometimes, I feel like a square peg in a round hole. As though I’m in a world and profession in which I don’t belong. My husband listens to my rambles and attributes it to my occasional, intense struggles with SAD. I’m not sure what it is — maybe just having a moment of detachment, Who can say for sure?
Maybe I’m just having a case of the Mondays. And that’s okay, right?
happiness in a cup
I cannot lie.
In many ways, I am a very simple person. I have very clear likes and dislikes.
I very much like soy chai lattes from Starbucks. They are the way I prefer to begin my day, they are a calming tonic when the stress feels like it’s too much, they are a warmth when life feels lonely and cold. I know it sounds ridiculous and overly romantic, but I seriously love.those.drinks.
My amazing husband has been encouraging me for years to quit my habit. Sometimes he’s supportive in a positive way (have as many as you want … I know you love them, have them!…– this strategy worked when we first met and I was failing at quitting smoking; he told me it was okay for me to smoke, and I quit cold turkey and have never gone back –) and sometimes he is supportive in a realistic way (babe, you will feel better if you don’t drink so much sugar and you know that …. think of how much money we will save in a week, let alone a year! — which he knows very much appeals to me because I love saving money –). And it intermittently works. Last year I didn’t have Starbucks for nearly seven months. But I inevitably went back. I always do. I justify it by saying that of all the vices in the world, of all the things someone with an addictive personality could get hooked on, soy chai lattes really aren’t that bad.
But they kinda are. And I kinda know it.
And — there again — I don’t really care. (Something i should remember when I’m being wildly judge-y about people with drug problems).
But here’s my side of the story — my dark, hidden love of what I call happiness in a cup. Life can be hard. It can beat you down, it can tell you you’re worthless, you’re stupid, you’re failing. And it’s easy to get caught up in that — the bad stuff seems to come with much more regularity than the good stuff ~ or, more to the point, it’s easier to focus on the hardships than find the blessings.
So to have something — a simple something, an easy to find something, a relatively inexpensive something, a legal and undamaging something — that without fail (unless made incorrectly) brings unbridled joy to your life — even if it’s only for the few moments it takes you to drink it –why would you ever banish that thing?
Anyway, after waking up halfway through the night due to sheer cold (I was shaking under four blankets and wearing sweatpants and a sweatshirt) I decided I was going to begin this day with some Chai. And it was wonderful. I arrived at my local shop, all the baristas (minus the angry one who always pretends not to know me) greeted me by name, knew my drink, asked how my weekend was going. It was such a friendly way to begin the day. That’s the other priceless thing — the “Cheers” feeling for lack of a more descriptive word. The idea that everyone knows your name. And on lonely days — days when my husby is far away, and the hours stretch out before me — it feels nice to have someone ask me how I’m doing (even if it’s just a superficial, coffee shop type of ask).
So — there it is. My love of Starbucks in black and white. Happy Sunday world! I hope yours started with some happiness in a cup, as well.
xoxo
when I find myself in times of trouble…
“Marilla, have you ever been in the depths of despair?”
“No. I have not. To despair is to turn your back on God.”
**********************
When I was younger, i was a book-worm. I loved little more than I loved getting lost in a book. There could be many roots to this love — moving often, being very shy, not being very good at friendship (another blog post all-together) — but the bottom line is, I loved to read as a child, and I love to read to this day. I just have a lot less time to do it.
Some of my favorite books were Lucy Maud Montgomery’s Anne of Green Gables series. I probably read them around the same time they were first serialized (and played ad nauseam, it seemed) on PBS. I loved that first mini-series, when Anne fell in the well and twisted her ankle, when she and Diana got drunk on what they thought was Raspberry Cordial, when Matthew bought Anne her first dress with puffed sleeves …. Magical. Reading those books made me want to be as smart as Anne, as clever and funny and creative and charming and beautiful. And in those books, it was cool to be smart. Which — at the time I was in middle school and high school — it was decidedly not.
I got to thinking about the books — and the miniseries — today as I felt as though I hit complete rock bottom. And I could hear Megan Follows’ voice as Anne Shirley, saying very sincerely to Marilla — have you ever been in the depths of despair? And Colleen Dewhurst’s bald practicality coming right back at Anne’s heartfelt, romanticized plea — to despair is to turn your back on God.
Today –if ever I’d been close to the depths of despair — well, today was it. Our day began early, as John had an international flight to catch to Cancun for work — and then it just kept spiraling downward (icy road conditions, bumper to bumper traffic as I approached the city, hit after hit in my in-box about various business traumas whose deadline — if I hadn’t already missed it — was today). I met my boss for lunch and the man who has always been a beacon of positivity looked like a defeated beast. Tired, slightly distracted, forlorn. I said — slightly in jest, but slightly in truth — I felt as though December lulled us all into a false sense of well-being, and January hit us with a vengeance. He ruefully agreed.
I can’t repeat things I’ve already said — even though so many things repeat themselves in life with no consideration for those affected. I miss my husband when he is away on business. I hate when he’s in other countries, because I am at the mercy of his schedule and both of us being on Skype at the same time. It is beyond lonely and with the immense stress at work, the tears overtake me at odd moments, and Lucy looks up at me half fearfully and half broken-heartedly. She wants to help, but she doesn’t know how and she looks for her daddy — as I do — and he isn’t there.
Work scares me every day — it scares me that it will overwhelm me, that it will become too much for me, that at some point I will be revealed as a fraud. I am blessed with incredible co-workers, an amazing staff at both restaurants, and so many people we work with on a regular basis — but sometimes I think I’m just making it all up as I go along. And maybe we all do that to some extent. I know in my heart that I know this industry, I know this business in my bones — I love it and I hate it but I know it, and I have instincts for it. I think I was built for it in a way I am not built for anything else. But every day I have to learn something new, I have to solve an unsolvable riddle, fit the pieces of an infinity-piece puzzle together … somehow. And it can be incredibly overwhelming, insurmountable. Humbling.
And usually, when all that becomes almost unbearable, I get to come home, to my warm, snuggly apartment, to my excitable, beautiful puppy and to the calm, supportive and reassuring presence of my husband. When that is taken away from me, I feel lost, adrift at sea in a storm … without my anchor and my strength. Without the person who makes me find the humor, who sees the light when I can only see the dark. We’re a good pair — I live at the extremes and he resides in the middle and together we cover the whole spectrum. But when he’s not here to pull me back from the abyss, I struggle. Some days I struggle at lot, and other days I don’t struggle at all. But the possibly is always there — that without him, I’ll tip right over the edge.
And then the tears begin again.
When Anne first arrives at Green Gables, it is revealed that Marilla and Matthew Cuthbert had asked for a boy — someone to help Matthew with the chores, to help run the farm as he grew older. But they agree to keep Anne for a bit — to see how things go. Anne has been shuffled from homes as – for lack of a better word — an au pair, to orphanages. She hasn’t had a family of her own. Marilla takes her to her room on that first night, and tells her to say her prayers. Anne — who is not one for silence — begins rhapsodizing about prayer, and the manner in which one prays. She expresses to Marilla that she has never understood why prayer happens kneeling next to a bed. In a somewhat skeptical attempt to humor her, Marilla asks Anne how she would pray.
With wide-eyed wonder, Anne tells Marilla she would go out into a wide field, and open her arms to a sky filled with brilliant stars, and just talk to God.
I like that idea. I’ve always thought it was beautiful. Highly romantic, but so beautiful and pure and true.
I’d like to walk into a huge field, open my arms, lift my face to the sky, and ask God to please have mercy on me, to know how grateful I am for all my blessings, and to please, give me strength when I am sure I have run out.
a moment of truth
Trying to blog every day has been much more challenging that I anticipated. I have posted more than once about what this space has become for me — my ideas and intentions. And inevitably I have fallen short — distracted by life and without very good reasons for my neglect other than sheer laziness.
I’m not saying that to be overly harsh to myself or to evoke any pity. I don’t have any other word to describe the reality that so often, doing nothing at the end of a day is so much more appealing than doing anything constructive. My brain is so fried and overworked, all I want to do is shut off. Blogging — while usually cathartic — does not allow my brain to shut off.
2015 has come in with bang and John and I have no deep winter lull as the weather freezes around us — he’s away in Cancun for five days beginning tomorrow and is only home for two before I’m off to LA for work. And then he’s off to NYC again for work before the end of the month. I am not used to such an absurdly active January. I mean — before we know it the seasons will be changing and summer will be here.
I also seem to habitually forget (perhaps mentally block?) the extreme pressure and stress of my job in January. It’s beyond crazy. I’m pretty sure I’m losing my mind and one of the thousand balls I have suspended in the air is going to crash and splinter and fall through the cracks. And if one does, businesses are jeopardized, thousands of dollars are at stake and many people’s livelihoods are put on the line. That’s some real sh*t, lemme tell you.
But when I have had a moment of overwhelming paralysis this week, I’ve also reminded myself that this business and insanity have given us a good life. And that’s a bigger blessing than anything. So I’m going to keep pushing myself to come to this space every day, even if what I write is stupidly inconsequential. And I’m going to keep on being grateful for the pressure and the busy-ness because it has given John and I so many gifts.
And that being said, I’m off to bed.
first snow
Today was the first true snow of the season. It began fast and steady just after seven a.m. and didn’t really end until nearly four. I’d already left the office by then — very concerned that the cold would make my commute home worse than the ice skating I did on my way in this morning.
It didn’t turn out to be a bad commute home but it was chilly chilly chilly by the time I climbed out of the car and Lucy and I did a tour around the yard.
I don’t know if it was the sudden temperature drop or just the marked difference between this morning and this afternoon, but the clarity of the late afternoon was stunning. The sky had been so gray and full of snow all day, that to see the pale blue sky and the clear straw yellow of the sun — totally breathtaking. It was as though everything had sharper edges, crisper colors. So beautiful.
I love the snow and cold.
panic attack
Right now, my eyelids are so heavy and my mind is so thick I cannot guarantee that this post will make any sense.
Today was a flurry of anxiety, frustration, fear and utter despair. I honestly wondered halfway through the day how I’d possibly done my job successfully to this point. I felt as though I was drowning. I try to learn every day at work — learn a little bit more about accounting, learn a little bit more about HR, learn a little bit more about insurance. Sometimes I feel as though my head is going to explode. Often I feel as though I’m failing. Luckily, and by the grace of God combined with a little hard work and elbow grease on my part, I’ve managed to be fairly decent at what I do, and I keep growing as the business grows — I guess that’s all I can ask for.
But amidst the growth and learning and keeping things rolling along come days like today. Ooof.
It’s somewhat surreal to shake uncontrollably for the majority of your day and not have a clear idea how to make it stop. But eventually, as another wave of panic seemed to engulf me, I realized I’d gotten through the majority of my to-do list, and I was safe to hit the road and head home.
Lucy had come to work with me (a leaky pipe and the necessity of a plumber shutting off the water is always the way a person likes to begin their first week of the new year). So we packed up my (overstuffed) bag and headed home.
I thought about my resolutions on my drive home — I actually thought about them a lot as I lay in the murky early morning darkness trying to settle my wildly pounding heart. Anxiety is the worst. But beginning each day by confirming that it is going to be a good day — SO HARD.
And yet, I sort of think it made today a little better. So that’s a start.
contrary
I’ve been in quite the mood today. So let me get a few things off my chest.
Watching Pittsburgh play last night was agonizing and heartbreakingly frustrating. I’m sad their playoff run ended so soon — but I couldn’t have watched that team struggle through another game. It was painful. I will miss the veterans on defense whom I am assuming will not be re-signed next year (Kiesel, Harrison, Taylor … dare I say Polamalu?) I will not miss watching the defense struggle when the Steeler’s defense shouldn’t struggle. Ever.
Next up: Whenever I begin watching one of “The Hobbit” movies all.I.want.to.watch is “Lord of the Rings.” I’m sure I’ll get over that one day and really crave returning to Bilbo’s adventure with the dwarves. But right now — I just really need a little Frodo and Sam — with some Strider and Legolas thrown in. Essentially the entire feeling of “The Fellowship of the Ring” — none of which “The Hobbit” films have.
Let’s take a little trip down memory lane …. Hopefully it clears up some of my love for the LoTR films.
In early 2002 I’d just returned from studying abroad in Italy. I’d wanted to stay another semester but circumstances (and finances) prevented it so I found myself back in State College, half-way moved into a room my brother sublet for me in a sorority house (sidenote: I am not, nor have I ever been, in a sorority). My parents had driven the two of us back to school on a cold January afternoon and nearly instantly headed home — for fear of getting stranded by the impending snowstorm.
The snow hit, and I unenthusiastically tried to put my room together. I was sad, and scared and not at all happy to be back at school. I felt alone. Really, fully, in my bones, alone. So — after meeting the girls who would be my housemates for a semester (one of whom is still my great friend, so it all ended up working out!) I decided to go for a walk. I bundled up (it was cold cold cold) and shuffled around State College (where the sidewalks weren’t all shoveled yet and no one was really out and about). After some walking and far too much introspective thinking, I found myself outside the movie theater and decided to see if anything was playing. I’d seen Ocean’s 11 that break and had really loved it — I thought watching that again was vastly preferable to returning to my new ‘home.’
Ocean’s 11 had begun half an hour earlier, and wasn’t playing again for quite some time. In fact, everything in the theatre had start times in over an hour, except The Fellowship of the Ring. I had absolutely zero desire to see JRR Tolkien’s epic. As in — none. I’d read The Hobbit during middle school and enjoyed it. But I had failed to be even slightly intrigued by the density of The Lord of the Rings. (That’s the nicest way I can think to describe trying to read Tolkien).
But I also REALLY didn’t want to go back to the sorority house. So I paid for a ticket, and after taking off several layers of snowy clothing and buying some popcorn and a soda, I settled into the last row of what was perhaps the smallest movie theatre I’d ever been in. The previews had already begun (I remember thinking forlornly that I’d missed the best part) and I watched and waited for the film to start.
And — not to be overly dramatic — it completely swept me away. And continues to do so to this day.
That movie, on that day, at that time — something about it was so magical, so transporting — that all the sadness and loneliness of being back at Penn State seemed to melt away into the background. And strangely — it was also a turning point. My college experience began to change then — school seemed less dismal, and I made new friends — friends to go drink margaritas with at Mad Mex, friends who came to see me in A Midsummer Night’s Dream, friends who brought me to cross training classes at local gyms … and so many other things! — sometime I’ll have to revisit the day Minda and I drank White Merlot and watched an entire season of Buffy while the fraternity next door did mud slides on their front lawn. The next year I became a total theatre school nerd, did lots of shows (both on stage and on crew) and made more friends who are still in my life today.
I know it probably sounds hokey, but there’s a part of me that feels as though that movie saved my life. Certainly changed my life. And maybe it did, maybe it didn’t. But it feels like it did to me. So a lot of times, when things feel a little overwhelming, all I want is to drift away into Middle Earth and forget my woes.
As I’ve written this, I’ve sort of marveled at how strongly things have marked time in my life. I can remember so many clear details of opening the door to the movie theater in downtown State College (that no longer exists) and being overwhelmingly disappointed that not a single other movie was available for me to see. And I also remember walking home in the blustering wind, still halfway in Middle Earth — plotting to buy the books (which I did) and read them from cover to cover (which I did not). Totally transported to a place of imagination and wonder. I saw the movie another two times in the theatre, and the subsequent sequels on opening night (Return of the King —midnight showing with my roommate at the time — nearly killed me! I was so tired by the end and I swear — the sun was coming up when we left the theatre!).
So I stared this post with a completely different intention. But I enjoyed walking down memory lane. I am glad of the significance this film has played in my life (just ask the man — we both completely love it). I’m glad I remembered the story of how I found it. It’s been a crazy trip down memory lane. Insane to think it was 12 years ago. Time is an amazing thing.
deal breakers
I was thinking today how everything seems to change when situations shift from the hypothetical to reality. All of a sudden, your vision becomes much more clear — what you like, what you don’t, what’s a necessity, what’s negotiable.
It made me begin to think about how that applies to so many things — not just huge life moments. I mean, a lot of times I try to walk a very fine line — especially at work, but also in other aspects of life. Trying to hear all sides of an issue before making a decision, etc. Once, I did vehemently disagree with a decision made about our menu, and I pulled all sorts of reports to support my cause. I won. But most of the time, I like to be as flexible as possible, because there are too many changes to get too attached (especially in the restaurant biz),
The hubs and I were laughing about it as we scrolled through postings on our iPads. Which things we could live with — and which things we couldn’t. It’s funny when you begin to contemplate making a huge life decision — which things become legitimately important.
I hope — when this newest adventure reaches its inevitable conclusion — that we can look around and feel completely comfortable with the choices we made. And completely at peace with the compromises.
Growing up is hard.
D5 Creation