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loss
Some nights I get on the train and my mind is so busy and my thoughts are so rapid-fire that I wish more than anything I had my laptop with me and could just start writing.
Sometimes I’m so angry I can’t calm myself — everything sets me off. Losing service at Suburban station (as though that never happened in the past … like, every day), the woman who seems to be strolling for enjoyment in the middle of the sidewalk/train platform/staircase, my assistant who seems to never run out of the same questions to ask me (repeatedly) on my way out the door. That I have answered numerous times in the past.
Sometimes i’m introspective and just want to get my thoughts on paper so I don’t lose them …
Sometimes I’m nostalgic, or sad or bursting with elation and joy. Sometimes I’m feeling clever or witty.
Today, I felt defeated. Defeated by an insurmountable to-do list that I have little to no assistance with (the job title of ‘assistant’ used above is for lack of a better word … she doesn’t really assist me very much when it counts). Defeated by an online card registration, defeated by bills I can’t pay, defeated by time. Defeated by a boss who is so compelled to build everyone else’s self-confidence and ego that he does so to my detriment. Defeated by Septa and the fact that both trains I was on today stopped –for seemingly no reason — for over 30 minutes each way. Defeated by everything.
And it made me sad, angry, introspective … disconnected. I stood on the train platform listening to ‘All of Me’ by John Legend on repeat, with the anxious feeling that I needed to do something, and felt on the verge of tears for a solid ten minutes.
I am not weak. I am not obtuse. I am not silly, or flippant. I’m sharp, and well-spoken and have walked through the fires of hell- by myself –and emerged on the other side. I’ve fallen and been broken and I’ve picked myself up and fixed myself. I’ve been humiliated and kept my head held high. I’ve worked indescribably hard for the things I have. I’m tired of apologizing for that. I’m tired of being made to feel bad for who I am. For the way I choose to live my life. For my amazing relationship with my husband. For being capable of doing my job. I seriously … and I mean SERIOUSLY … am tired of being punished for being good at what I do.
And as I sat here, typing furiously, my husband picked a P!nk song to play on our Sonos. And I began to sob uncontrollably. Because she is the strongest, baddest, most amazing artist. And everything suddenly feels a little better.
memory lane
Friendship is a weird thing.
It’s been on my mind recently — I’ve reconnected with some old friends and been transported back to different times in my life, when I was a different person. And I have marveled that in fact, I have some lovely friends. People who have done extraordinary things with their lives, accomplished amazing feats. Are the epitome of joy and wonder and beauty.
And it has sort of made me reflect on all sorts of people who drifted in and out of my life.
Friendship changes as you age. As I have become more comfortable in my skin, and feel more secure in who I am — I don’t completely love having ‘friends’ who seem to think less of me than I think of myself. And weeding those people out, making those decisions — it’s really hard. There could be a possibility that I’m a terrible friend, which is why I look around and I only have a few good relationships. But … maybe I just feel less of a need to surround myself with people …. Thoughts ….
I have to spend every second of every day with myself, and I don’t know that it’s all that healthy to have friendships with people who don’t respect me, respect my life choices, or respect my spaces.
I can say without hesitation that I have a handful of people in my life who are just really good eggs. I couldn’t say a bad word about them if I tried (and I have zero desire to try). I feel blessed to have them in my life, to share stories and memories with them from time to time. And I have friends who are more like … habits? People who are in my life because of circumstance more than choice. It’s hard when you realize that — when something occurs and all of a sudden, things seem more clear than they’d ever seemed before.
Like I said. Friendship is a weird thing.
bad words
Honestly, I think using the word ‘diet’ is self-defeating.
I don’t know why it’s been on my mind recently, but it has, and I felt compelled to share my thoughts. Dieting — thinking it, saying it, attempting to do it …. well, I think it’s self-flagellation.
I have never been a big fan — and I am not a small human being. I am not the girl who could eat chicken wings and deep dish pizza and drink with the boys and wake up looking like I spent hours in the gym. I have never looked like I spent hours in the gym, and I have never very seriously dieted. I sort of feel as though life should be enjoyed as much as we can enjoy it — and eating good food and drinking good wine help boost the enjoyment. Water and crunchy raw veggies do not.
Sort of.
Over two years ago I was diagnosed with the not-very-joyful autoimmune disease multiple sclerosis. When you are first diagnosed with something that big the amount of information that seems to constantly steam-roll you (imagine sitting in the ocean and just getting pummeled in the face repeatedly with medium to aggressive-sized waves) never ends. Looking back, I can see fairly clearly the stages of denial and acceptance I went through regarding it. First — I’m not changing anything, I am going to just live a happy life and everything will be okay. Second — I reject everything you are telling me (you with experience and years of trial and error and knowledge -pwaf). Third — I hate everyone and no one can possibly understand how hard this is, how unfair this is. Fourth — I’m tired. I’m so tired, and I just want to give up. I miss my life. Fifth — This medicine … works? Sixth — Modifying my diet…. works? Seventh — I remember life like this … it’s a little different, but it’s familiar. Eighth — What other little tweaks can I make to make life a little easier and a little more normal? Ninth — Oh. That’s what you were talking about. Ah. Gotcha. No, you were right. My bad.
So that’s how I’ve found myself — at the young age of thirty-five — knowing a lot more about nutrition than I ever wanted to know. I mean, yes, I think it’s wildly trendy right now because we, as a society, have crested the top of the hill, and as we collectively gazed downward, realized that many of the wonderful advances we’d marveled at were actually doing untold damage to the environment and our insides and we should probably address that stat.
But nutrition is a minefield, and I say that with a completely straight face. So-and-So over here says one thing, and has reams of evidence supporting it, and we all enthusiastically jump on the train because who could possibly refute all.that.evidence?
Oh, well, since you asked, Mr. Blah Blah over here has stacks and stacks of control groups and study groups and spreadsheets of evidence showing that So-and-So’s premise is a bust.
Everyone, off the train.
It’s exhausting. Seriously. I cannot keep up. And I really really don’t want to. It’s a lot of work, it’s expensive, and I’m not sure I can feel any sort of difference. And when you have MS — you feel everything. Trust me.
So two and a half years into my MS journey (sidenote: that’s a train I wish I could get off — sigh– but that’s another story) I have armed myself with knowledge, some hand-picked opinions, and my amazing husband (there isn’t anyone better).
And I’ve made the proactive choice that I will never attempt to diet ever again. I mean it. I wasn’t very good at it in the first place (and who really wants to pursue things they aren’t amazing at or at least love? Not this little duck, I can tell you).
Here are my thoughts about life, and eating and all that jazz. And it’s not complicated — in fact, I think it’s pretty simple. But I like talking/writing, so that is why you have been subjected to my ramblings pre-point.
Eat whole foods. Listen to your body. Don’t overindulge in anything. Don’t restrict things.
It’s a little harder than it sounds in practice, because we all love a good cookie or milkshake, or that really insane coffee drink (which stopped being coffee after the first step). But I’ve found that even when I want to eat a block of cheese, soft bread and butter and a huge glass of red wine… I remember how it’s made me feel in the past. And then all of a sudden, a little bit of the shine dims.
Think about the things you enjoy, think about the way you want to live. You want to enjoy each day, be present, have energy. Putting value into those things helps to curb the cravings for not-so-great behavior. Everything sounds like a good idea at.the.time. And sometimes, it’s important to follow those urges, ride the bull, do the shot.
But life is about moderation and more importantly, balance. I think sky diving might be super wild one day. I can’t wait to go to Milan in February. But I also like my couch, and a good book or movie. I like keeping the balance of fun and exciting and comfortable. I think that idea, that principal, can be applied to every decision in life.
And food should be no exception. Make choices to eat well every day. Eat until you feel full. Eat slowly so you enjoy each taste, each bite. But don’t diet. Because it takes all the fun out. All of a sudden that’s all you’re thinking about. What you can’t have, what’s banned. I think it’s better to focus on what you enjoy. Focus on the fun of cooking.
Anyway. That’s my rant on dieting. Happy Saturday and Labor Day weekend all!
city mornings
I love the city in the morning.
There’s something clean about it, fresh. The feeling of a new day, before the heat and the sweat and the anger and the fatigue sets in. When everyone has a purpose, an agenda … confident that today will be a productive day.
This morning the air that greeted me as I emerged from Jefferson Station was heavy with humidity — no freshness at all in the breeze — instead, the heady aroma of petrol fumes. I’ve been so tired recently that it’s hard for me to distinguish the difference in vibes, but this morning the entire city felt tired — tired and frustrated and without any optimism. Everyone walked quickly, and showed their irritation at those who did not … the pedestrians shuffling aimlessly along, seemingly unaware of the rush of morning commuters.
I walk from the train station to Starbucks — I don’t think I could function without my chai latte. But I pass the entrance to my office, because the Starbucks between the station and the office is terrible — so I go a little further to one where they consistently know how to make my drink properly. It felt mellow there — somehow there were not throngs of people waiting anxiously in line for their morning java. And it felt like a nice respite after the hustle and bustle of the train station and the walk down twelfth street. They are even beginning to know me there and that is always a comfort.
Now I’m here, in my windowless office, not quite sure how to tackle the daunting to-do list that was ceremoniously ignored yesterday in deference to sleep.
Sometimes I forget I have MS. Sometimes, life feels so good, and I take care of myself just well enough, that things seem fairly normal. And then there are weeks … days like today… when I am painfully aware of the restrictions that MS has put in place for me. And I wonder, foggily, how I’m going to get through the things that need to be done and still have job in the morning.
Just two more days, and then the weekend. And hopefully, more unrestricted sleep.
honeysuckle
We have been in our new house for a little over a month. Six weeks maybe? I feel as though I’ve lost track of time. Everything feels different now … as though our apartment — that lovely little cozy nest of our life — is miles away. It’s still John. And Lucy. And it’s still me. But everything else feels different.
Which is a good thing. I think.
We moved in on a Saturday — full of excitement and anticipation. Waiting first for the moving truck to arrive, and then for our furniture to be wrapped and loaded … and then waiting for things to be unloaded so we could begin to unpack. All those boxes, packed over weeks and weeks at our old apartment — coming spectacularly undone in a matter of days.
And as our things began emerging from the anonymity of brown cardboard, it started to sink in — that this was our new home. That hour by hour and day by day, as furniture was put into place and rugs were lined and clothing was unpacked — we began to inhabit the space.
I still look around and feel like a child playing house. Everything is so pretty and so new (we had to buy a lot of furniture to make the transition from one bedroom apartment to three-story townhouse). It feels like a dream. Which I think should feel good … but sometimes it feels a little overwhelming, a little tiring.
I’d like to be at home, in sweatpants with no make-up on, eating Oreos and watching a bad rom-com and feel like it’s home. But we haven’t quite gotten there yet — it’s all still too new.
It’s a weird conundrum — feeling nervous to use things in your own house. John and I laugh together at night, talking about how the house is use-able — that is the point. But I don’t want to ruin all my nice, pretty new things. I’m so in love with all of it — I can’t bear the thought of ruining anything.
Other things have changed as well. (Obviously!) I take the train to work — which I sort of love. There’s less freedom with timing but just collapsing in a seat and half listening to a book or music, or NFL Radio for an hour — lovely. However, I am aware that I haven’t encountered a bad weather commute yet — so we’ll see how that goes, as the weather changes and coats and hats and rain and snow and wind are involved.
Lucy now has a dog walker — which is the most amazing thing. Knowing someone is stopping in mid-day to stretch her legs and allow for a potty break, treats and clean water … it alleviates so much guilt and stress for J & I. And Lucy is a much happier puppy. But I wonder if that’s just her walker, or also the house. The space, the stairs for her to run up and down — she loves it here.
I love it here, too. I think I love it too much … our new bed and soft bedding, the huge shower and bench where I can actually see things and am able to shave my legs without scarring myself for life … the huge dining room table where we can all sit and eat when visitors come… the fireplace my hubs bought me that hangs the length of our sitting room and crackles at night, mesmerizing me … our deck with its couch and grill and fire pit … my own office, filled with all my knick knacks, my piano, my yoga mat. My Magnum P.I. photo, my Hines Ward figurine.
I love it so much and yet, I feel as though it isn’t mine, I didn’t earn it, this can’t belong to me. I know that will fade, as the days begin to shorten, and the leaves turn from green to brilliant oranges and yellows and reds and then wilt to brown before scurrying away in a stiff breeze. The ‘newness’ and the feeling that I am out-of-place will fade as John and I settle into our home. As we cook more dinners, and watch more movies on the couch. But right now, as I re-read my old blog posts, and my affection for our old apartment is so apparent, I feel caught in the in-between.
I don’t miss that apartment. I don’t miss it at all — which is a little strange. I like our house, I like my new commute to work — I like living 25 minutes from my parents. I like the trees, and the rolling fields — the open-ness of our new home. But it isn’t worn in yet — it’s like a new shiny car that you are afraid to drive until you get that first ding. And then all of a sudden, it’s your car.
Today I couldn’t open my eyes — John got up and got ready for work and I didn’t even realize. When I finally cracked an eyelid, he was fully dressed and heading out the door. He kissed me softly good-bye, gave Lucy a snuggle and was gone. I dropped my head and was back to sleep. Hours passed. I woke up, I got dressed. Lucy and I went for a walk. I sat down to work in my beautiful little office. And then, without thinking much, I walked back to my freshly made bed, wrapped myself in my Steelers blanket, and went back to sleep.
Since that day that we moved into this house, it’s been non-stop. The excitement of the house, the excitement of guests, the excitement of organizing each room, the excitement of work …. And each Wednesday — the day I have in my schedule to allow me to rest and do my job well Monday and Tuesday and Thursday and Friday — has been full of work men in and out of the house, fixing all the issues we encountered after move-in. There hasn’t been a breath, there hasn’t been a moment of stillness. And that’s not a bad thing, because it’s all been exciting and fun and an adventure.
But my body just gave out today.
And as I woke from my nap, and the rain that had been drumming down earlier had broken, and the haze had lifted, and a clean cool pale yellow sun was stretching across the treetops and through the window, I thought it was about time I sat down and re-visited my blog.
And this day — this day of laziness in my new house — somehow made it feel a little more like home. And it took some of the weight that had been pulling on my shoulders off — weight I didn’t even know was there.
It still feels a little like some other person’s house — that I’m just visiting, passing through. But it feels a little less like that every day.
old and new
Tonight the man and I, along with our trusty sidekick Lucy Lou, are heading over to watch the Ambler Symphony play at Hope Lodge. We have tried to go every year (it hasn’t always worked out … honeymoon, Mini Cooper purchase, blah blah blah) but we are ‘traditions’ kind of people, and this is a good one.
Sadly, it will also probably be our last Ambler Symphony at Hope Lodge. It will be a long drive from our new abode on a Wednesday night. But it’s been fun re-visiting all the things we love to do in this area, and really appreciating them, before moving on to new traditions and routines.
I’m excited to see what our new home and community bring into our lives. But we have thus far been informed and influenced by our current traditions, and this is one of my favorites. I dutifully got an abundant charcuterie board from the restaurant, and even though we will be drinking fizzy water this year instead of a beautiful summer wine (I think we took Charles and Charles rose the last time we went and it was lovely!) I know we will have a great time.
This crazy journey of life is –in the words of The Beatles — a long and winding road. And even though this section is reaching its conclusion, I have loved the steps we’ve walked together in our home, in our little town. I will always remember this place with so much love and fondness.
blessings
I have moments every day, when life feels unbelievably frustrating, unfair, impossible to navigate — just plain bad. And I carry the stress in my shoulders, my back, my jaw. I make myself sick (legitimately sick) with fear and over thinking.
And then there are moments, when the man and I are driving with the windows down, Lucy’s head rested on the window sill, the Beatles or Bruce on the radio — nowhere to be, nothing to do, just a moment in time. And as I watch the country side slide by, the green grasses waving in the breeze, the bright blue sky dotted with puffs of white clouds, I think how full of blessings my life is.
Maybe things don’t always go my way. Maybe I have to do things I don’t want to do. Maybe there are restrictions on things that I don’t like. But — even if I can’t run today … it doesn’t mean I’ve never been able to run, and it doesn’t necessarily mean I won’t ever be able to run again (although that is a strong possibility).
But my point is – it’s so easy to get side-tracked by the ‘bad’ things. The ‘no’s’ and the ‘nevers’ — but if you discipline yourself to find the good, it’s sort of incredible how they mightily outweigh the bad. My husband and I will never have children, but we are blessed in each other, in our friendship and our enjoyment of each other’s company — the sound of each other’s voices. We have families we love and who love us, and perhaps the most high maintenance dog in.the.world. But Lucy’s high maintenance helps dissipate the heaviness of my high maintenance — and that’s sort of a beautiful gift.
Today, after cleaning our apartment more thoroughly than we’ve cleaned in quite some time (a person could pass out from the cleaning solution fumes) we packed Miss Lucy in the truck and we headed to a local restaurant (dog-friendly, of course) to enjoy some munchies while our landlords showed the apartment to potential new renters. And the real-ness of leaving this home set in — the excitement for our new adventure, and the sadness at leaving our beautiful, lovely space behind. And I thought how blessed we were to have lived in our apartment for six years, with landlords who have become our friends. How blessed we are to have arrived at this moment, when we are able to afford our first home — in the exact area we’ve always talked about wanting to live.
And I thought how important it was, how important it should always be — to appreciate all the things in our lives. Because life is precious, people are precious — and it all comes and goes so very fast.
my mother’s daughter
The older I get, the more I see my mother and my father in the things I do, the decisions I make, the way I smile. Family is such a strange thing — these people who raise you, who influence every nuanced part of who you are without you even realizing it … Until time passes, and you catch your reflection in a mirror, out of the corner of your eye, and instead of seeing yourself, you see your mother.
My mother is incredible. She is the most amazing human being I’ve ever had the privilege to know. She is wise, and thoughtful and diplomatic. She is beautiful and funny and creative and kind. She is all the good that exists in the world. I am a fraction of her (by default of DNA, really). A shadow of who she is as a woman. I am constantly impressed by her — in big ways, in small ways … really, in all ways.
I am inordinately proud to be her daughter. Just to know her, to have been raised and influenced by her — I consider it the greatest gift I’ve ever received (followed closely by meeting my husband, who is also one of the world’s truly good people).
I don’t have the words, or the ability, to properly articulate how much I love my mother, my father, my ‘little’ brother, my aunt. I have been gifted with the most incredible family — people of impeccable character, integrity. I don’t say it enough — don’t tell them often enough how much I love them, how endlessly grateful I am. Life seems to get in the way — petty, insignificant things that shouldn’t but do consume the hours, the days.
I am so proud to be my mother’s daughter. I think she is incomparable. She is perfection. And I love her more than any word, no matter how beautifully crafted, could ever explain.
migraine
So, as one may have surmised, this week has been heavy on the stress.
And now, despite a ton of water, taking out my contacts, washing my face, and popping some Excedrin, my head is still pounding like a champion behind my left eye.
Sometimes the intense nature of my job catches up with me. Don’t get me wrong — I actually love what I do. I feel like it’s the perfect combination of restaurant and business and I think I’m (usually) pretty good at it. I certainly stumble (as we all do) and I am always learning. The company is growing, and that means there are more things to consider, but it also means more options.
It also means there are more people interested in how and why we do what we do. And that microscope is on me, since I run the daily business operations. It can be slightly overwhelming and exhausting. Especially since I already have the nifty handicap of having MS (which restricts how many hours a day I can work — because I need my rest, otherwise sh*t hits the fan).
All of that, plus a house in boxes, and the excited anticipation of buying our first home — well, it’s a lot for this little girl. And now, this migraine is making me stop and take a break.
soy milk, please
This morning, when I took a sip of my chai latte and realized the barista had used the wrong milk — that in fact, my $5 dollar ‘coffee’ drink was incorrect and therefore, unenjoyable, I began to cry.
I sat at the red light two intersections away and despite my best efforts, sobbed. I don’t know why — at that moment, about that subject — that I seemed to break wide open. But there it was. All I could think about was the fact that I had anticipated the enjoyment of my morning drink, and it was wrong. And therefore — according to my ‘in the moment’ logic — my entire day, my entire existence had been ruined.
It is a little silly in retrospect.
I ended up driving to my local Starbucks, and without any questions (perhaps it was my tear-stained face and the full venti cup I held forth to them) they made me a new drink.
But the entire scenario put something very clearly into perspective for me. I am holding it together by a thread right now. Everything is setting me off — crazy situations at work, troubling emails from my relatives — an incorrect drink at Starbucks. These are all things I have encountered in the past and at no time did they instigate hyperventilating water works.
So when I look back at June 2015, I hope this post reminds me that all the change, all the uncertainty — all the unknowns — those things have been very challenging for me. This girl of routine and habits. That mixed in with all the excited anticipation is a healthy dose of fear. Fear of failure, fear of things going wrong. Fear of making mistakes.
D5 Creation