Day 62
Today was the kind of day that makes even someone like me wish for Spring. The weather was mild and the sun was shining. Everything felt a little easier.
I managed to be highly efficient all day — both getting in my Peloton miles and going to yoga (!!yay!!) plus running some errands, seeing the chiropractor AND making the majority of dinner.
I did all of it with a killer headache which is (for me) a huge accomplishment.
When I asked Dr. M for a referral to another neurologist last week I thought he took me seriously. (He *doesn’t do* migraines …. just MS). Three day long, debilitating headaches occurring after my infusion like clock-work seem … suspicious at the very least. But there was no referral in my paperwork and my disillusionment with modern-day healthcare deepens.
It’s just a frustrating place to be — governed by my health but unable to get any actual, comprehensive help. It’s all so fractured and not a single doctor wants to say anything for certain for fear of a lawsuit.
It’s exhausting. I’m exhausted. As though MS fatigue weren’t enough.
Ergh.
Xox, g