January, 2015

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west coast

As my co-workers and I sat in the interminably long cab ride from the airport to our hotel, I was eerily reminded of Cape Town, South Africa.  Maybe because it’s warm in January, and the last time I was warm in January I was in Africa.  Maybe it was the palm trees, and the blue sky and the green vegetation.  A lot of it also has to do with the architecture of the buildings.  So many gates and bars and fencing — just like South Africa.

I got a little lost in my head — as one who is seated in the front seat of a cab who can hear none of the conversation behind her might be expected to do.

I’d love to really ruminate on it, because I found it very odd. But today is a little jam-packed and I have to figure out where the pool for this place is (not for fun reasons — it’s because we’re all meeting there).  On the plus side, my room is beautiful and has a little balcony, so that’s very nice.  On the down side, I am so hungry I could probably eat my left arm, and the snacks provided are a million dollars each (that is obviously an exaggeration — but not a huge exaggeration).  Even the water is $14.  Craziness.  Thankfully I brought my handy dandy hot spot, since they also charge you (in addition to the insane room rate) for access to WiFi.

So, that’s my first impression of West Hollywood.  Yup.

smile

Sometimes, the simplest things can completely change even the smallest moments.

I can’t pretend — I’m completely exhausted and I’ve finally hit a day when coming and blogging feels a little bit like a chore.  But I had such a clear idea earlier today about what I wanted to say that I don’t want to do it complete injustice.

I work every day in center city Philadelphia.  I’m very used to the normal jostling and interactions on the street.  There’s an underlying discontent — a mistrust that runs like a current, an energy that one becomes accustomed to after awhile.  As though everyone is out to get everyone else.  Listen, I love Philly –in the strange way that I also feel as though it’s home — but I won’t deny that it’s not unusual for strangers to feel as though Philly is unfriendly and cold.

I think there are many reasons for that, and I won’t get too philosophical about it. But I think it makes sense, and it’s truly, authentically Philadelphia.

But … every once in awhile you meet someone’s eye, and they return your gaze with a huge and genuine smile.

And today I thought — a smile makes all the difference.

It changes a person’s whole face.  It warms up an entire room.  It buzzes — filling a space with energy.  It sort of made my day when a woman smiled at me in the hallway this afternoon.  A real, true, huge, honest smile.

So often, flat and empty stares greet you and it makes you feel even more alone than you felt before.  A smile — a smile changes all that.  All of a sudden you are two people, connected for the briefest of moments.  Finding the happy and sharing it.

new adventures

I love new cookbooks.  They are so inspiring.  Cooking can be fun but so often — in the craziness of life — it becomes more of a chore.  New cookbooks take the tediousness out of it, even if only for a minute.

I mean, seriously, it is completely unappealing to come home after a long day, a long commute, and have to put together a meal.  I’m not saying that I don’t enjoy it sometimes.  John will put on some nice music and we’ll spend the evening putting a meal together and talking about life and it’s really good.  But it’s hard to do that every night.

Anyway, I had a moment while the man was away on business when I felt completely inspired to purchase new cookbooks that follow the paleo diet trend.  I also — in my infinite wisdom and enthusiasm — bought the PBS mini-series Anne of Green Gables and a PSU sweatshirt that reads “I graduated from Penn State so you can assume that I’m always right” — or something along those lines that I thought was funny when I bought it.

My cookbooks arrived today and I greedily paged through them before John got home — salivating at photos of food I would never normally crave.  Food photography is an incredible art.  I salute it.

And now that we have all these new recipes that are gluten-free and sugar-free and dairy-free and all kinds of other things free it is almost –almost- inspiring enough to be excited about modifying our diets.

The thing is — I don’t really like doing things because I’m supposed to.  I get very ornery and stubborn.  And being told by many (I mean many) people that I need to use diet to help with my MS makes me want to do nothing in regards to my diet.  But …. and this is painful to admit … when I’m strict and good about what I’m eating and drinking, I do actually feel better.

So here John and I are, at the beginning of another food journey, another walk down an unknown path in hopes that there is abundance just around the corner. And I’m feeling pretty good about it — but that’s because the pictures in these books are so pretty.  Hopefully everything tastes as good as it looks.

trends

I realized — while re-reading the past few posts — that I have been trending dangerously close to the ‘depressing’ line.  Not what I want at all.  But — and I’m sure you can understand this — it’s where I’ve been mentally, and it’s very hard to sit down and write honestly and authentically about anything other than the place you are currently in (unless you’re writing fiction — but that’s a whole different ballgame).

I’m not disciplined or trained in the art of writing.  I’m pretty much just good at putting onto the page what I’m feeling in my soul.  Sometimes it’s fairly light-hearted, but sometimes, it’s not.  Life isn’t easy, and each of us chooses — to some degree — the experience we have.  Being positive, thinking positively — so strong, so powerful.  But sometimes, so incredibly difficult.

Sometimes, despite wishing and hoping that you felt differently, all of a sudden you find that your perspective has irrevocably changed.  Something you’d once been deeply passionate about leaves you frustrated, irritated, disinterested.  And you wonder — without much hope — how to find where you’d once been.

Anyway.  I’m going to try trending toward the happy for awhile — hopefully it helps.

floating in fatigue

Fatigue is a funny thing.  Sometimes it feels like you’re walking through water — sounds are muffled, your head doesn’t seem to work properly — everything feels slow and blurry around the edges.  Other times it feels like you’ve had too many glasses of wine — loose, and happy and slightly off-balance.

I’ve become intimately familiar with fatigue over the past few years.  I’d always struggled with feeling tired — something that is a strong symptom of MS, so it isn’t surprising, really.  But the fatigue that comes with MS is so utterly all-consuming, it’s almost funny.  And it comes in all shapes and sizes.  I’ve gotten very used to feeling tired all the time, for everything.  It’s all about pushing through — not allowing anything to manipulate your life so much it becomes it’s ruler.

Today the fatigue is so overwhelming I feel as though my brain is short circuiting.  As though I am unable to focus on anything for more than a few moments.  Everything feels foggy, and very difficult.  Small things become huge efforts.

It sucks.

I’ve definitely found the beginning of 2015 to be a challenge.  Maybe I just wasn’t quite ready to hit the ground running — maybe I needed a little bit of a respite before going full steam.  I’m not totally sure.  I just know that I feel stretched to the ends of my finger tips, the limits of my capabilities, the outskirts of my strength.

Tomorrow I get to go in and fill my veins with the poison of my drug infusion.  I’d love to be indignant about turning to medicine as my savior (“Let food be thy medicine and medicine be thy food” comes to mind).  But I’d be lying if I said anything other than I’m counting the minutes.  Two years ago I was diagnosed with the knowledge of my disease and since then, it’s been a spiraling rabbit hole of symptoms and flares and relapses and ineffective treatment.  To finally have found a glimmer of hope means that I’ve clung to it, focused on it, put all of my eggs (and everyone else’s) in one basket.  And today I’m less than twenty-four hours away, and it’s almost as if my body is giving out in anticipation.

So, that’s me today.  it’s the only thing I am aware of, the only thing I can seem to get my head around.  Nothing else is linear, my thoughts are amorphous clouds ebbing and flowing in my mind.

It’s been a long day.  And there’s still a long way to go.

the grind

And we find ourselves, as per the usual, back again at Monday.

Today wasn’t quite as intense as last Monday.  Work still felt like I was wading through quicksand — really difficult and really slow.  But I didn’t shake all day.  I got things done, slowly and quietly crossing things off the list.

As I was driving home, listening to my most favorite app, audible.com, I began to think about who I am as a person. Don’t worry.  It didn’t come out of left field — it started with my upcoming business trip.  A quick trip to LA to eat some good food and help to bring shape to our newest restaurant concept.

We’re staying at a very nice hotel.  Apparently, it has quite the pool scene (I imagine the MTV beach house — but that’s probably my imagination and my age).  No spa though.  According to the website, it’s 2 miles from a lot of things.  I’m sort of at a loss as to what I’m going to do with all my free time.

This is where the afore-mentioned thought process began.

I’m a girl — woman, whatever — who listens to books about King Arthur on audible.  I’m not listening to the ‘cool’ books, or the ‘trendy’ books.  I’m listening to historical fiction or gentle portraits of a human’s life.  There’s nothing edgy about me,  I watch Newsroom on repeat, am currently binge-watching Madam Secretary [and wondering why I don’t do work every day that has a bigger impact on the American experience], and I love LoTR, Star Wars, Batman and Rocky. I go to bed before 9.30pm most nights.  I like to talk about football, current events, history, food and books.  I have never done drugs.  Like, for real and I went to school for theatre and have been in the restaurant business more than half my life.

And I’m okay with all of that.  I like me, I like the things I like — I find comfort in the choices I make and the things I enjoy.  I’m not delusional enough to think that any of it makes me cool, or trendy, or cutting edge (which would help out in the business that I’m in).

But sometimes, I feel like a square peg in a round hole.  As though I’m in a world and profession in which I don’t belong.  My husband listens to my rambles and attributes it to my occasional, intense struggles with SAD.  I’m not sure what it is — maybe just having a moment of detachment,  Who can say for sure?

Maybe I’m just having a case of the Mondays.  And that’s okay, right?

happiness in a cup

I cannot lie.

In many ways, I am a very simple person.  I have very clear likes and dislikes.

I very much like soy chai lattes from Starbucks.  They are the way I prefer to begin my day, they are a calming tonic when the stress feels like it’s too much, they are a warmth when life feels lonely and cold.  I know it sounds ridiculous and overly romantic, but I seriously love.those.drinks.

My amazing husband has been encouraging me for years to quit my habit.  Sometimes he’s supportive in a positive way (have as many as you want … I know you love them, have them!…– this strategy worked when we first met and I was failing at quitting smoking; he told me it was okay for me to smoke, and I quit cold turkey and have never gone back –) and sometimes he is supportive in a realistic way (babe, you will feel better if you don’t drink so much sugar and you know that …. think of how much money we will save in a week, let alone a year! — which he knows very much appeals to me because I love saving money –). And it intermittently works.  Last year I didn’t have Starbucks for nearly seven months.  But I inevitably went back.  I always do. I justify it by saying that of all the vices in the world, of all the things someone with an addictive personality could get hooked on, soy chai lattes really aren’t that bad.

But they kinda are.  And I kinda know it.

And — there again — I don’t really care.  (Something i should remember when I’m being wildly judge-y about people with drug problems).  

But here’s my side of the story — my dark, hidden love of what I call happiness in a cup.  Life can be hard.  It can beat you down, it can tell you you’re worthless, you’re stupid, you’re failing.  And it’s easy to get caught up in that — the bad stuff seems to come with much more regularity than the good stuff ~ or, more to the point, it’s easier to focus on the hardships than find the blessings.

So to have something — a simple something, an easy to find something, a relatively inexpensive something, a legal and undamaging something — that without fail (unless made incorrectly) brings unbridled joy to your life — even if it’s only for the few moments it takes you to drink it –why would you ever banish that thing?

Anyway, after waking up halfway through the night due to sheer cold (I was shaking under four blankets and wearing sweatpants and a sweatshirt) I decided I was going to begin this day with some Chai.  And it was wonderful.  I arrived at my local shop, all the baristas (minus the angry one who always pretends not to know me) greeted me by name, knew my drink, asked how my weekend was going.  It was such a friendly way to begin the day.  That’s the other priceless thing — the “Cheers” feeling for lack of a more descriptive word.  The idea that everyone knows your name.  And on lonely days — days when my husby is far away, and the hours stretch out before me — it feels nice to have someone ask me how I’m doing (even if it’s just a superficial, coffee shop type of ask).

So — there it is.  My love of Starbucks in black and white.  Happy Sunday world!  I hope yours started with some happiness in a cup, as well.

xoxo

dear john

My head is so full of conflicting thoughts I don’t know where to start.

I guess I’ll start by saying — again, repeatedly, forever — I miss you.  Because I do.  I miss you to the very core of my being, and the feeling envelopes me, it hangs in the air of our home, it blankets us as we sleep.  The missing you, the emptiness, it never stops, it never ends.  It is real, and complete and unimpeachable.  It is life when you are not here.

I began today by making brownies.  I don’t know why.  I don’t need brownies. I wasn’t even really craving brownies.  I think I just wanted something to do that had nothing to do with work.  So now I have a pan of brownies, and they will either be completely here by the time you get home, or they will be completely gone. I cannot guarantee either outcome.  It depends how the next few days go.

Next up — this afternoon I head into the city for a tasting — it’s a crudo tasting (please don’t be jealous — and I say that so you are just a little bit, just a smidgen jealous, which eases the ache of your absence just a bit, for a moment).

Lucy has been a pro — I know she knows you aren’t here, and because of that, she’s so gentle with me (99% of the time — she really loves the snow!! — until it freezes in her feet) and at the same time, utterly forlorn.  Her eyes are filled with confusion mixed with sadness.  Where is daddy?  And ps.  She still doesn’t tolerate any version of anything related to LoTR.  Even when you aren’t home to completely capitulate to her big, brown eyes.

Right now, my obsessive checking of the weather tells me that Monday could be dicey.  I hope it is not — that’s just something I don’t want to deal with while you are away.  But if it is, I’ll do a short day in the city and make sure I’m home with Miss Lucy.  For her benefit, as well as my safety (who wants to drive during rush hour when freezing rain could be involved?).

I’m hoping to spend all of tomorrow in my pajamas on the couch.  I know it sounds like the epitome of laziness, but this week has nearly beaten me, and I’m tired and palpably sad. It is during this time that I cannot predict the fate of the brownies. I’m looking forward to Wednesday for many reasons — you will be home, and our little family will be whole again, but also I have my next infusion.  And I am very much looking forward to that.

January seems to be slipping through my fingers faster than I can keep up —

I hope you are enjoying sunshine and warmth.  Please know that I love you, am enormously proud of all you do and your success, but mostly I’m hella grateful that we somehow found each other and despite everything (bad timing, weird circumstances, vast disapproval) we stuck with each other — we knew it was bigger than all that bulls*t.

You are my everything.  And I am utterly and completely humbled by that and by your partnership.  Thank you.

I love you.  Be safe.

when I find myself in times of trouble…

“Marilla, have you ever been in the depths of despair?” 

No.  I have not. To despair is to turn your back on God.” 

**********************

When I was younger, i was a book-worm.  I loved little more than I loved getting lost in a book.  There could be many roots to this love — moving often, being very shy, not being very good at friendship (another blog post all-together) — but the bottom line is, I loved to read as a child, and I love to read to this day.  I just have a lot less time to do it.

Some of my favorite books were Lucy Maud Montgomery’s Anne of Green Gables series.  I probably read them around the same time they were first serialized (and played ad nauseam, it seemed) on PBS.  I loved that first mini-series, when Anne fell in the well and twisted her ankle, when she and Diana got drunk on what they thought was Raspberry Cordial, when Matthew bought Anne her first dress with puffed sleeves ….  Magical.  Reading those books made me want to be as smart as Anne, as clever and funny and creative and charming and beautiful.  And in those books, it was cool to be smart.  Which — at the time I was in middle school and high school — it was decidedly not.  

I got to thinking about the books — and the miniseries — today as I felt as though I hit complete rock bottom.  And I could hear Megan Follows’ voice as Anne Shirley, saying very sincerely to Marilla — have you ever been in the depths of despair?  And Colleen Dewhurst’s bald practicality coming right back at Anne’s heartfelt, romanticized plea — to despair is to turn your back on God.

Today –if ever I’d been close to the depths of despair — well, today was it.  Our day began early, as John had an international flight to catch to Cancun for work — and then it just kept spiraling downward (icy road conditions, bumper to bumper traffic as I approached the city, hit after hit in my in-box about various business traumas whose deadline — if I hadn’t already missed it — was today).  I met my boss for lunch and the man who has always been a beacon of positivity looked like a defeated beast.  Tired, slightly distracted, forlorn.  I said — slightly in jest, but slightly in truth — I felt as though December lulled us all into a false sense of well-being, and January hit us with a vengeance.  He ruefully agreed.

I can’t repeat things I’ve already said — even though so many things repeat themselves in life with no consideration for those affected.  I miss my husband when he is away on business.  I hate when he’s in other countries, because I am at the mercy of his schedule and both of us being on Skype at the same time.  It is beyond lonely and with the immense stress at work, the tears overtake me at odd moments, and Lucy looks up at me half fearfully and half broken-heartedly.  She wants to help, but she doesn’t know how and she looks for her daddy — as I do — and he isn’t there.

Work scares me every day — it scares me that it will overwhelm me, that it will become too much for me, that at some point I will be revealed as a fraud.  I am blessed with incredible co-workers, an amazing staff at both restaurants, and so many people we work with on a regular basis — but sometimes I think I’m just making it all up as I go along.  And maybe we all do that to some extent.  I know in my heart that I know this industry, I know this business in my bones — I love it and I hate it but I know it, and I have instincts for it.  I think I was built for it in a way I am not built for anything else.  But every day I have to learn something new, I have to solve an unsolvable riddle, fit the pieces of an infinity-piece puzzle together … somehow.  And it can be incredibly overwhelming, insurmountable.  Humbling.

And usually, when all that becomes almost unbearable, I get to come home, to my warm, snuggly apartment, to my excitable, beautiful puppy and to the calm, supportive and reassuring presence of my husband.  When that is taken away from me, I feel lost, adrift at sea in a storm … without my anchor and my strength.  Without the person who makes me find the humor, who sees the light when I can only see the dark.  We’re a good pair — I live at the extremes and he resides in the middle and together we cover the whole spectrum.  But when he’s not here to pull me back from the abyss, I struggle. Some days I struggle at lot, and other days I don’t struggle at all.  But the possibly is always there — that without him, I’ll tip right over the edge.

And then the tears begin again.

When Anne first arrives at Green Gables, it is revealed that Marilla and Matthew Cuthbert had asked for a boy — someone to help Matthew with the chores, to help run the farm as he grew older.  But they agree to keep Anne for a bit — to see how things go.  Anne has been shuffled from homes as – for lack of a better word — an au pair, to orphanages.  She hasn’t had a family of her own.  Marilla takes her to her room on that first night, and tells her to say her prayers.  Anne — who is not one for silence — begins rhapsodizing about prayer, and the manner in which one prays.  She expresses to Marilla that she has never understood why prayer happens kneeling next to a bed.  In a somewhat skeptical attempt to humor her, Marilla asks Anne how she would pray.

With wide-eyed wonder, Anne tells Marilla she would go out into a wide field, and open her arms to a sky filled with brilliant stars, and just talk to God.

I like that idea.  I’ve always thought it was beautiful.  Highly romantic, but so beautiful and pure and true.

I’d like to walk into a huge field, open my arms, lift my face to the sky, and ask God to please have mercy on me, to know how grateful I am for all my blessings, and to please, give me strength when I am sure I have run out.

a moment of truth

Trying to blog every day has been much more challenging that I anticipated.  I have posted more than once about what this space has become for me — my ideas and intentions.  And inevitably I have fallen short — distracted by life and without very good reasons for my neglect other than sheer laziness.

I’m not saying that to be overly harsh to myself or to evoke any pity.  I don’t have any other word to describe the reality that so often, doing nothing at the end of a day is so much more appealing than doing anything constructive.  My brain is so fried and overworked, all I want to do is shut off.  Blogging — while usually cathartic — does not allow my brain to shut off.

2015 has come in with  bang and John and I have no deep winter lull as the weather freezes around us — he’s away in Cancun for five days beginning tomorrow and is only home for two before I’m off to LA for work.  And then he’s off to NYC again for work before the end of the month.  I am not used to such an absurdly active January.  I mean — before we know it the seasons will be changing and summer will be here.

I also seem to habitually forget (perhaps mentally block?) the extreme pressure and stress of my job in January.  It’s beyond crazy.  I’m pretty sure I’m losing my mind and one of the thousand balls I have suspended in the air is going to crash and splinter and fall through the cracks.  And if one does, businesses are jeopardized, thousands of dollars are at stake and many people’s livelihoods are put on the line. That’s some real sh*t, lemme tell you.

But when I have had a moment of overwhelming paralysis this week, I’ve also reminded myself that this business and insanity have given us a good life.  And that’s a bigger blessing than anything.  So I’m going to keep pushing myself to come to this space every day, even if what I write is stupidly inconsequential.  And I’m going to keep on being grateful for the pressure and the busy-ness because it has given John and I so many gifts.

And that being said, I’m off to bed.